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Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night.

Do you experience leg pain? Describe the sensation, and if you note the treatments you are on, that would be great. Pyridostigmine is associated with cramping. But from personal experience, I believed this to cause my leg pain until I stopped mestinon, which has continued. I am sure many of you are the same way.

I look forward to seeing any trends we may note with our community here and our lower body cramps experiences.

Feel free to share any advice you have found for relief 😀
- Jodi, Team Member

  1. Generalized pain. Aches.burning sensation

    1. Yes, aches and burning sensation, also joint pain

      1. Occasionally

        1. Hi you are not alone, as you can see by this thread. How are you doing this week with cramping and/or pain? Do you find anything provides you with some relief? I hope so. Wishing you well. -Jessica, Team Member

      2. Yes, my wife has terrible leg cramps at night. She was just diagnosed in December 2023, has had plasma pheresis in December and is now doing IVIG treatments once every 4 weeks. 40mg of prednisone, Cellcept, and then several other meds.

        1. I am sending my deepest compassion to you and your wife as you both navigate this new aspect of your lives. It sounds like your wife is in the hands of an excellent, knowledgeable MG team that is providing quality care. Is your wife seeing any improvement?

          Please do not hesitate to ask any questions about MG; we are here to help! Here is a new article on our site about finding relief from nightly leg cramps: https://myasthenia-gravis.com/living/leg-cramps-night

          -Jodi, Team Member

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