FeaturedActive 5 days agoHow do you handle unsolicited advice about MG?Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...Reactions 0 reactions Comments2 repliesCoping
FeaturedUnusual MG Symptoms?Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...Reactions 0 reactions Comments32 repliesGeneralized MG
Active todayWhat Part of Your Legs Do You Have Pain or Cramps Most Often?What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...Reactions 0 reactions Comments1 repliesTreatmentSide EffectsSymptoms
Active yesterdayPyridostigmine availabilityI take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...Reactions 0 reactions Comments5 repliesTreatmentCoping
Active yesterdayHow Often Do You Receive IVIG infusions?Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...Reactions 0 reactions Comments1 repliesTreatmentSeronegativeAwareness
Active yesterdayDo You Know Anyone Besides Yourself Who Has Myasthenia Gravis?Do you know anyone besides yourself (or the person you are here to support) who also has Myasthenia gravis? Do you think MG is more common than statistics say? Possibly...Reactions 0 reactions Comments1 repliesFriends & FamilyAwarenessNewly Diagnosed
Active yesterdayHow old were you when you were diagnosed with MG?Add any other details you'd like to share!...Reactions 0 reactions Comments63 repliesDiagnosis
Active yesterdayMuscle crampingI haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the...Reactions 0 reactions Comments33 repliesDiagnosisGeneralized MGSymptoms
Active yesterdayLeg and Foot Cramping and PainMany individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...Reactions 0 reactions Comments190 repliesSleepSide EffectsSymptoms
Active yesterdayHypertension Medication Has anyone been diagnosed with hypertension. If so, what medication do you take, due to having Generalized Myasthenia Gravis. How is the medication. What side effects did you experience. I’m...Reactions 0 reactions Comments5 replies
Active 3 days agoMedicationsDoes anyone have experience with medications that exacerbate their condition? I have congenital myasthenia which is genetic and not auto immune, so my experience is probably a bit different than...Reactions 0 reactions Comments2 repliesGeneralized MG
Active 5 days agoDo you have problems swallowing?Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...Reactions 0 reactions Comments5 repliesSymptomsDiet & NutritionMuscle Weakness