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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Happy Hypoxia/silent Hypoxia or similar

Just wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...

In remission from GMG by fixing diet

Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...

Diet

Is there one basic recommended diet for patients with gMG? Especially for fatigue and brain fog? Thank you...

double vision

For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...

Breathing problems

I'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...

Awful problems after covid jab

Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...

Tapering Off Mestinon?

I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...

HUSK MG

I accompanied my friend to a neurologist. Because of slurred speech and weak facial muscles he tested her for the Musk type of MG. The test was negative for MUSK...

Burning pain/muscle weakness

Hello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't get enough nutrients/fuel to keep working like normal...

NEW APPROVED MG TREATMENT for Gmg - Vyvgart Hytrulo

Super exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...

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