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Read conversations, start a discussion, and connect with others about myasthenia gravis.

EMG test on Mestinon?

Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...

Does IVIG work?

Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...

MYOCLONUS

Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...

My PCP says...

Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...

toll prednisone took on my body

I have a big round face, big neck, weight gain and round torso, just cut back over 3 months and now off of it. too early to see what will...

I've bee n prescribed CellCept

Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...

What medical testing is OK if you have gMG?

Orthopedic specialist is wanting to do multiple tests to evaluate several issues. These include MRI, nerve conduction tests, mylogram with dye, etc. Can't find internet sites that discuss medical testing....

Pyridostigmine

I was just diagnosed about a 5 weeks ago, doc put me on 60mm of Pyridostigmine 3x a day. I feel no change, Doc said first, it could take up...

Treatment

Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like the "cure" may be worse than the disease?...

Diagnosis Eludes Us- So Frustrated

At 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...

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