Getting GP to take me seiouslyWe all know that GP face to face appointments are like gold dust but sometimes I really need to be seen any tips ?...Reactions 0 reactions Comments3 repliesGeneralized MG
What is myasthenia gravis?What are some tips to help me with myasthenia gravis?...Reactions 0 reactions Comments1 repliesAwarenessAssistive DevicesGeneralized MG
Happy Hypoxia/silent Hypoxia or similarJust wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...Reactions 0 reactions Comments0 repliesSymptomsGeneralized MG
In remission from GMG by fixing dietDeveloped GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...Reactions 0 reactions Comments2 repliesRemissionDiet & NutritionGeneralized MG
DietIs there one basic recommended diet for patients with gMG? Especially for fatigue and brain fog? Thank you...Reactions 0 reactions Comments1 repliesGeneralized MGDiet & Nutrition
double visionFor dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...Reactions 0 reactions Comments14 repliesVisionGeneralized MGTreatment
Using foods that contain magnesium (e.g. basil)Many myasthenia gravis websites tell us to avoid consuming magnesium because it can weaken muscles and potentially lead to a myasthenic crisis. However, I wondered whether that applied to foods...Reactions 0 reactions Comments3 repliesDiet & NutritionGeneralized MGTips & Advice
Breathing problemsI'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...Reactions 0 reactions Comments1 repliesDiagnosisAssistive DevicesGeneralized MG
Awful problems after covid jab Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...Reactions 0 reactions Comments2 repliesGeneralized MGMuscle WeaknessSide Effects
Tapering Off Mestinon?I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...Reactions 0 reactions Comments4 repliesMuscle WeaknessGeneralized MGTreatment