Does anyone else have bowel/bladder issues with MG?Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...Reactions 0 reactions Comments17 repliesGeneralized MGMuscle WeaknessSymptoms
HUSK MGI accompanied my friend to a neurologist. Because of slurred speech and weak facial muscles he tested her for the Musk type of MG. The test was negative for MUSK...Reactions 0 reactions Comments1 repliesGeneralized MG
Burning pain/muscle weaknessHello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't get enough nutrients/fuel to keep working like normal...Reactions 0 reactions Comments16 repliesGeneralized MGAwareness
NEW APPROVED MG TREATMENT for Gmg - Vyvgart HytruloSuper exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...Reactions 0 reactions Comments3 repliesTreatmentGeneralized MGSymptoms
Pregnant with MGHello everyone, I've been away for quite some time now and that is due to the fact that I found out me and my hubby are expecting our 3rd child...Reactions 0 reactions Comments4 repliesGeneralized MGTips & Advice
Mg and asthmaI have been treated since2001 for Mg. Briefly prior to that they said I had asthma. Mg was diagnosed and asthma treatment discontinued. I had chest infection over Xmas and...Reactions 0 reactions Comments10 repliesGeneralized MGHealthcare Team
Not reacting to treatmentsHi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...Reactions 0 reactions Comments1 repliesCaregivingAutoimmune DiseasesGeneralized MG
Myasthenia Gravis post COVID Vaccination Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...Reactions 0 reactions Comments15 repliesGeneralized MGNewly Diagnosed
Soliris (Eculizumab) Outcome & Side EffectsEculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...Reactions 0 reactions Comments0 repliesTreatmentRefractory MGGeneralized MG
Low-dose naltrexoneHello everyone There's someone here who has heard of or is taking LDN ?...Reactions 0 reactions Comments9 repliesGeneralized MGTreatment