Swings of emotions following diagnosis I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...Reactions 0 reactions Comments4 repliesNewly DiagnosedCopingTips & Advice
Advice about antibiotics I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...Reactions 0 reactions Comments2 repliesNewly Diagnosed
What would you tell yourself when you were first diagnosed?Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...Reactions 0 reactions Comments9 repliesNewly DiagnosedMental HealthTips & Advice
Treatment Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like the "cure" may be worse than the disease?...Reactions 0 reactions Comments2 repliesGeneralized MGNewly Diagnosed
Plasmapheresis cessation My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions 0 reactions Comments6 repliesNewly DiagnosedTreatment
Newly diagnosed at age 82 Since 1997 I've had symptoms which I think have been myasthenia gravis all along but was misdiagnosed with a psychiatric disorder, bipolar II rapid cycling. Symptoms were physiological only, with...Reactions 0 reactions Comments4 repliesNewly Diagnosed
Positive MUSK antibodies, followed by 2 negative tests, then enlarged thymus.I have had strange weakness symptoms on and off for about 10 months. My doctors checked for M.S and a few other things , all of which came back negative...Reactions 0 reactions Comments2 repliesNewly DiagnosedGeneralized MGThymectomy
Newly diagnosed.One day in mid August my daughter stopped by where I was working and noticed my eye was drooping. I made an appointment with my eye doctor for the following...Reactions 0 reactions Comments11 repliesNewly DiagnosedSymptoms
Still Improving I have come a long way since my MG diagnosis in July 2020. I saw my specialist today. My eyelids were even and the twitching is reduced, double vision is...Reactions 0 reactions Comments1 repliesNewly Diagnosed
FeaturedFor the newly diagnosedBeing diagnosed with any condition can be challenging. Being diagnosed with a chronic autoimmune disease might feel impossible at first, but the good news is that it’s not impossible and...Reactions 0 reactions Comments3 repliesNewly Diagnosed