What Part of Your Legs Do You Have Pain or Cramps Most Often?What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...Reactions 0 reactions Comments1 repliesTreatmentSide EffectsSymptoms
What Percentage of Your Day Is Impacted by MG?What percentage of your average day is impacted by MG? This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when...Reactions 0 reactions Comments2 repliesSymptomsWork & EmploymentMuscle Weakness
Headaches or migraines as a primary or persistent/main symptomHi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...Reactions 0 reactions Comments3 repliesResearch & Clinical TrialsAwarenessSymptoms
Is your job/ boss accommodating when your Myasthenia gravis symptoms impact your performance?Is your job/ boss accommodating when your Myasthenia gravis symptoms start impacting your capability to perform? Are they aware you have MG or just the symptoms you have? Or do...Reactions 0 reactions Comments1 repliesWork & EmploymentSymptomsNewly Diagnosed
Does Anything Specific Provoke Breathing Difficulty for You?Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...Reactions 0 reactions Comments1 repliesTriggersSymptomsCrisis
Was Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions 0 reactions Comments94 repliesSymptomsDiagnosisAwareness
Side effects from medications that your doctor wont acknowledgeHave you ever started a new medication and began having symptoms that your doctor refuses to acknowledge? How did you overcome this? How did it make you feel?...Reactions 0 reactions Comments1 repliesSymptomsSide Effects
What were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions 0 reactions Comments9 repliesNewly DiagnosedSymptomsCoping
Managing weakness when waking upHi everyone, I am new to this forum/website and I was only formally diagnosed with MG in November 2023. I am 25 and based in the UK. I have comorbid...Reactions 0 reactions Comments1 repliesMuscle WeaknessNewly DiagnosedSymptoms
Is Your Job MG Friendly?Is your job/career myasthenia gravis friendly? You can interpret the question as you wish....Reactions 0 reactions Comments0 repliesWork & EmploymentTriggersSymptoms