Stories

I was diagnosed 6 years after the onset of my symptoms. Two months before of my medical entrance test, my condition suddenly got so bad that I ran out of...

It's been almost 3 years since hubby has had a crisis. He took his meds, avoided infections, and improved steadily. Then one day last week MG came out of the...

I was diagnosed in 1974 with this disease. I had double vision and was very weak in my arms. I fell down the steps going out the front door with...

My Vyvgart treatment started May 18, 2022. I am at 10 weeks from that start date. Here is an earlier update I posted. Included in my start kit was a...

I am a 57-year-old male, a university teacher in India. I was diagnosed with MG only about a year ago, but now I think I may have been living with...

I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But a quick intervention with the neurology team gave...

12 years ago I was diagnosed with MG. I couldn't swallow, had a very hard time talking, was fatigued, weak, and had little or no control of my tongue. Anytime...

I don't know if this has been brought up... When I have several things I want to accomplish I think of all that energy. How can I do all of...

I am AChR-positive, and allergic to Prednisone, so my treatment is Pyridostigmine only. I was at 60 MG 5 times a day and struggling. I have received 4 rounds of...

My journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started my clinical rotation in med school. Night shifts...

I had taken Mestinon for years. The pharmacy printout mentioned slow heart rate as a possible side effect. I had not noticed a slowed pulse and so went on as...

My name is Stephen, I reside in the North East of England. I've never enjoyed great health since 2003 when I developed chronic recurring nasal polyps, and I'm now five...

After reading all of your stories about MG, I am glad not to be the only one with this. I was diagnosed in April 2019 with a pretty bad case...

I just started the new drug Vyvgart, I am on the fourth dose given over 4 weeks with a break in between I am feeling a lot better. I was...

I was diagnosed with MG on June 2, 2021. The first major symptom was waking up with double vision. After seeing my PCP, he sent me to an ophthalmologist the...

Hi. My name is Brad. I am 60 years old. My diagnosis was only a week ago, but this process may have started back in 2020. Back then, I started...

I was weak everywhere from the get-go. In March of 2005, I noticed I couldn't button my jeans or raise my arms to fix my ponytail. Then I started choking...

During a family Christmas party, my uncle, an optometrist, noticed something different with my eyes. "Come here Kathryn, let me get a close-up of your eyes." Following his finger movement...

I started experiencing mild MG symptoms 2 months ago. I'm not officially diagnosed yet but I think I am having a milder case of ptosis. What do you think?  ...

On November 18th, 2021, I suffered from horrendous double vision. Weeks earlier, I started having issues with bladder control. I visited my GP and was immediately sent to the stroke...