Caregiver

One of the hardest parts of living with a rare disease are those awkward explanations. Myasthenia gravis (MG) doesn’t always come with a limp or a rash. It sometimes comes...

After almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares...

Everyone has those moments. You are surprised by a comment. It could be from a stranger or a close acquaintance. They say something about your visible symptoms or limitations. Or they...

With a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require a lot of preparation and a surprising level...

There is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you do and what you get are related. A...

Life with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled hands-on work to simple errands. Handling all of...

Receiving a diagnosis of myasthenia gravis (MG) can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent, or friend who...

Life as a caregiver or care partner to someone with myasthenia gravis (MG) can be overwhelming. Whether you are a spouse, parent, child, or other loved one of someone with...

Myasthenia gravis (MG) brings challenges on many levels. Fatigue and weakness are only the beginning. Chewing and swallowing can become more difficult. Reflux is often common. Worst case, food can...