Let Me ExplainOne of the hardest parts of living with a rare disease are those awkward explanations. Myasthenia gravis (MG) doesn’t always come with...reactions5comments
Role ReversalAfter almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We...reactions2comments
I Wish I Had Said …Everyone has those moments. You are surprised by a comment. It could be from a stranger or a close acquaintance. They say something...reactionscomments
Crisis TimeWith a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require...reactions6comments
Be Your Own Agent - or TheirsThere is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you...reactionscomments
Finding a Caregiver for Someone with MGLife with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled...reactionscomments
5 Helpful Tips for Myasthenia Gravis CaregiversReceiving a diagnosis of myasthenia gravis (MG) can be a life-altering experience, not only for the person with the diagnosis, but also...reactions3comments
Ask the Advocate: Caring for a Partner with Myasthenia GravisLife as a caregiver or care partner to someone with myasthenia gravis (MG) can be overwhelming. Whether you are a spouse, parent...reactions5comments
The Gravis GourmetMyasthenia gravis (MG) brings challenges on many levels. Fatigue and weakness are only the beginning. Chewing and swallowing can become more difficult...reactions6comments
