I have been living with MG for nearly 11 years and I have worked as a patient educator, clinical advocate and online community leader for a little over 8 years now. My own experience with MG spurred me on to walk hand in hand with my fellow patients and do all I can to make their day-to-day lives a little better.
I created a Facebook page (Myasthenia Gravis Unmasked) a little more than 8 years ago as a conduit for community support, education, advocacy, and mental health support (laughter makes everything better!). A few years later I launched my foundation, Myasthenia Gravis Hope Foundation, to expand my efforts already begun on MG Unmasked.
Today, I work with companies, clinical leaders, researchers, and medical teams all over the world to help shape a tomorrow for MG that is patient-centric and devoted to expanding our limited understanding of MG.