Its Been A While
Silly question, for my MG treatment my doctor has me on a temporary high dose of Predisone in and effort to bring my MG under better control as he put it. This is in addition to taking Pyridostigmine (Mestonin)
For those living and coping well, do you take a combination of the slow release mestonin (180 mg) and the quick release mestonin (60 mg) or do you take one or the other and not both?
I think it would be easier to take 3-4 of the slow release version and spread them out over the entire day, rather than a large number of the quick release 60 mg pills when the symptoms kick in. I am finding it hard to manage the sheer volume of pills right now.
And I am wondering if it would be better just to go with the IVIG treatments. supposedly that would give almost a month's relief at a time and only have to have the quick release pills for an as needed when the IVIG effects wear off. Is that true? And would it get me off the current high steroid dose of prednisone? I gotta admit that scares me
Not to mention that the Prednisone
and the temp large dose of Prednisone is 45 mg total. Prednisone here comes in only 2 dosages, either 5mg pills or 50 mg pill. But I am not staying on the high dose for long, hopefully, so temporarily I am taking 9 5mg pills of the Prednisone daily, that and the mestonine and other meds I take for other conditions is making management difficult. I am assuming that with IVIG treatments (monthly or whatever it works out to) that I would be drastically ableto cut out the steroids and much of the mestonin. Can anyone confirm that? It would make the IVIG worthwhile in my opinion if it could
