Active todayPyridostigmine availabilityI take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...Reactions 0 reactions Comments5 repliesTreatmentCoping
Active todayHow Often Do You Receive IVIG infusions?Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...Reactions 0 reactions Comments1 repliesTreatmentSeronegativeAwareness
Active 6 days agoMyasthenia Gravis and Anticonvulsants (Antiepileptics)Anticonvulsants (or antiepileptics) are drugs designed to control or treat seizures, nerve pain, and some mood disorders. Some "mood stabilizers come from the anticonvulsant class. Common anticonvulsants include: Depakote® (divalproex...Reactions 0 reactions Comments0 repliesDepressionTreatmentTriggers
Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...Reactions 0 reactions Comments4 repliesTreatmentSide EffectsNewly Diagnosed
Has an MG Treatment Caused You Increased Heart Rate?Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...Reactions 0 reactions Comments1 repliesTreatmentSide EffectsAwareness
PLEX or IVIG Complications?Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...Reactions 0 reactions Comments3 repliesTreatmentCrisisTips & Advice
Ocular MG? Which Treatment Has Worked Best for You?Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...Reactions 0 reactions Comments6 repliesVisionTreatmentDriving
Pyridostigmine/Mestinon Adverse ReactionsDid you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...Reactions 0 reactions Comments4 repliesTreatmentSide EffectsAwareness
Are You a Diabetic With Myasthenia Gravis?Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....Reactions 0 reactions Comments4 repliesHealthcare TeamTreatmentNewly Diagnosed
Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...Reactions 0 reactions Comments0 repliesSeronegativeTreatmentInsurance & Disability