Getting Back to a Semi-Normal Life with Myasthenia Gravis
Last updated: May 2023
It has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have gone from doing whatever I wanted, when I wanted, to doing nothing at all.
Now, this is not the first time a myasthenia gravis flare has done this to me. But prior to my diagnosis, these flares would last a lot longer because I was not on treatment. I have seen a major change since being on the Prednisone, CellCept, and Mestinon. Although it did take a little over a year, I am able to be kind of "normal" once again.
I can do simple things without relying on someone else
While I still must rest at times and take my medicine as prescribed, I have been waking up in the morning looking forward to the day. I am grateful that after the last 3 years of not being able to do anything, I am here. I experience a thrill of anticipation that I am able to do the simplest of things without having to rely on someone else.
Now there is a lot of catching up to do around the house. I have been able to get most of my kitchen cupboards cleaned and reorganized. But the other basic house stuff will have to wait for a rainy day because there is too much to do outside right now. And I prefer being outside and playing in the dirt!
I can take care of my garden
Over the last few weeks, the weather has been nice so I have been outside doing some gardening. I have planted raspberries, grapes, blueberry bushes, rhubarb, and strawberries.
After planting 20 different strawberry plants, I was walking along in another part of our yard when I spied a strawberry coming up. Turns out, it was not just 1, but lots of them! The summer before my myasthenia gravis diagnosis, I planted strawberries there, but they never grew ... or so we thought. Well, I uncovered a strawberry bed that is now about 5 feet wide by 10 feet long.
Planning around the heat
I love gardening, but I do know that the heat, especially when there's humidity, causes issues for me. So this summer, I will have to plan out the best time of day to take care of my gardens. Oh, and by the way, I will plant a vegetable garden - I have already started!
Earlier this spring, I planted tomato, cucumber, and zucchini seeds. They are now all growing and doing fine! I started these in the house because at that time I wasn't sure if I was going to be able to get out and do any gardening due to my myasthenia gravis symptoms.
The benefits of rest
I am going to relate my experience back to the strawberries - I planted them, but they all seemed to have died and did very little. But with a little rest, they slowly and magically came back to life. And they're spreading their joy! So, we should never give up hope with myasthenia gravis because all things are possible!
How helpful is following a daily routine for managing your MG?
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