Creating The Perfect Hospital Bag for Myasthenia Gravis

Living with myasthenia gravis (MG) can mean frequent hospital visits, especially for those of us on immunosuppressants. In my experience, what might seem like a minor infection or cold can quickly escalate into a serious medical issue.

This reality has taught me the importance of having a well-prepared hospital "to go" bag. As a frequent hospital visitor due to MG and other underlying conditions, I’ve refined my bag to include everything I need for those unexpected trips. Here’s my experience and guide to help you create your own.

Essential items to include

Quick and efficient hospital visits are crucial. A well-stocked bag ensures I have everything needed to manage long waits in the emergency room or unexpected admissions, which can sometimes take days to secure a bed. This bag not only makes my hospital stays more comfortable but also helps in managing my MG effectively.

Comfortable and adaptive clothing

Comfort is key when you're in the hospital. I always pack loose, comfortable clothing. Items without metal parts are especially useful during scans. I also include adaptive clothing that allows easy access to my chest for cardiac monitoring and my port for treatments. This makes the numerous medical procedures a bit more bearable. Comfortable slippers or easy-to-put-on shoes are a must.

Hygienic products

Maintaining hygiene is crucial, especially during extended hospital stays. My bag always contains body wipes, a toothbrush, toothpaste, and a hairbrush. No-rinse hair caps are lifesavers for freshening up when a shower isn't accessible.

Medical, insurance, and personal documentation

Having updated medical documentation can save a lot of time and confusion. I keep an updated list of my medications, including dosages and reasons for taking them. This helps during triage or admissions. If you wear a medical alert bracelet or necklace, ensure it's accessible or consider having a spare in your bag.

I also carry a list of my diagnoses and contact information for my medical specialists, along with copies of my insurance cards and any relevant insurance documents. I include a copy of my ID and any other necessary personal identification documents.

Self-care products

To maintain my mental wellbeing, I bring items that help me relax and uplift my mood. My bag includes a watercolor book, paints, and brushes. Electronics like chargers, extension cords, and headphones help keep me connected and entertained during long waits. Books, magazines, or puzzles are great for passing the time.

Service dog supplies

If you have a service dog like I do, don’t forget to include their necessities like food, water, and comfort items. Their wellbeing is just as important during hospital stays.

Specialty medications

For those of us who take specialty medications, it's wise to pack some in the bag or at least keep a list of these items to add before leaving for the hospital. Being prepared can prevent a lot of stress.

Additional suggestions

Over time, I've learned to include other items that can make hospital visits smoother:

• Emergency contacts: I keep a list of emergency contacts, including family members, close friends and healthcare providers.
• Comfort items: A small blanket, pillow, or eye mask helps me rest more comfortably.
• Food and snacks: Non-perishable snacks and a reusable water bottle keep me nourished during long waits.
• Writing materials: A notebook and pen are handy for jotting down notes, questions for doctors, or journaling.
• Financial means: I pack some cash and a credit/debit card for any incidental expenses.

Personalizing your bag

Creating my hospital "to go” bag is a proactive step in preparing for unexpected hospital visits. It ensures that I am not only prepared, but helps to ensure my next visit is as smooth and comfortable as possible. By including adaptive clothing, hygiene essentials, self-care items, important documentation, and supplies for my service dog, I can handle hospital stays with greater ease and confidence.

Every MG patient’s needs are unique, so tailor your bag to suit your personal requirements. Consider what helps you feel most comfortable and secure during hospital stays. Personalize your bag to meet your specific needs, and you’ll be better equipped to face any hospital visit.