Myasthenia Gravis In America: What's That?
The Myasthenia Gravis In America survey is now closed. Thank you for your participation!
It can take years to receive a myasthenia gravis diagnosis, often while experiencing frequent and debilitating symptoms. To learn more about the challenges of myasthenia gravis (MG) and to give a voice to those affected, we are conducting our annual survey. By taking our survey, you can bring awareness to the realities of life with myasthenia gravis.
What is the survey about?
The survey covers “basics” like diagnosis and treatment experiences but also dives into the nitty-gritty, like the emotional impact and the day-to-day challenges of managing myasthenia gravis. We hope to learn more about all things MG, including complementary and alternative treatments, diet and nutrition, symptoms, and quality of life!
Why should I take the survey?
Each person who takes the survey contributes to a better understanding of myasthenia gravis awareness and knowledge, and can help others who are dealing with MG to feel less alone. Sharing your experiences through the survey can reveal the similarities, and differences, between each person’s journey with myasthenia gravis, and can bring greater awareness to this condition that affects thousands of Americans.
What Will the Survey Ask Me?
The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.
Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You will resume where you left off.
How Do We Use the In America Survey Data?
Survey responses help us and our partners better understand the myasthenia gravis community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become the property of Health Union, LLC.
What happens after I take the survey?
After the survey closes each year, the Editorial Team at Myasthenia-Gravis.com takes your responses and creates an infographic to share the community’s responses and highlight important findings from the survey.
But that is not all – throughout the year, we publish articles and videos based on learnings from the survey. We hope this survey-driven content contributes to the information available to those affected by myasthenia gravis and helps them connect with those who have walked the same path.
Do you know anyone else in your network (family, friends, colleagues, acquaintances) that also lives with MG?