7CTKN4
"Off and on symptoms throughout the day. Was sick last year with Covid-19 and almost died due to MG immune response. Been in & out of hospitals with a seeming continual flare ups. On Pyridostigmine, it helps but not good enough. Six 60 mg tabs daily right now just barely keeping me out of the hosp. Was prescribed Cell-Cept to suppress immune response now finding out it makes symptoms worse and have stopped taking it."
Yes, I know that the mega dosing of Vitamin D has to be watched in the hospital setting. Appreciate the advise on it.
Do talk to your doctor. Vitamin D is "oil soluble" and it is possible to overdose easily. You can find medical doctors that will be open to discussing other paths with you. Juliana (Myasthenia-gravis.com team)
It's great that you have been doing your own research and discovered what factors from your past might have contributed to your health today. I can't imagine how frustrating this has all been for you but I am so glad to hear you are taking a proactive approach. Just know you have a whole community here for support! Hugs, Kaitlyn (Myasthenia-Gravis.com Team Member)