Sdlarter
"I'm frustrated.
I'd love to know more about MG-diagnosed people's experiences with their neurologists. Mine is proficient in medicinal treatment, but he doesn't seem to believe my fatigue or lack of strength (not weakness), and dismisses instances like dropping things as not MG-related. This lack of understanding is a source of frustration for me.
I'm very frustrated because I could feel better and have a better quality of life but perhaps my neurologist is not helping."
Hello,
Thank you for taking the time to post! While I don't have a personal experience to share, I was hoping you would find this person's experience with finding the right doctor helpful.
https://myasthenia-gravis.com/living/specialized-doctor-benefits
Also, there is a link in one of the comments for a doctor search. I clicked on it, and unfortunately, it no longer works. However, here is another link to search for providers who specialize in MG:
https://myasthenia.org/living-with-mg/find-medical-experts/
I hope this helps 😀
Warmly, Chelley (Team Member)