No Neurologists That Treat MG Where I Live

I was first diagnosed with MG 5 years ago when I had double vision in both eyes. I also had weakness in my limbs, and held my head in a left tilt. I would choke on a dime, or liquid would come out of my nose when I tried to swallow.

Tests were negative, but the symptoms were real

All my tests were negative. Yet the neurologist only tested me once. Even though my symptoms increased in intensity, he told me I did not have MG. I live in southern Alabama, and there are absolutely NO neurologists who treat MG.

Finding a knowledgeable doctor

I went to an ocular neurologist and an ocular physical therapist. Both the physical therapists and the ocular neurologist disagreed with the first neurologist. They definitely feel that I have ocular MG.

If you could see the number of prisms in my glasses, you would probably agree. I have terrible balance issues, and at 68, I am so terrified of falling. I also have Hashimoto’s thyroid disease, Narcolepsy, and a lot more that I won’t go into.

It’s hard to be told NO you don’t ~ then YES you do! Finding a doctor who can help is heartbreaking, so you just take it one day at a time.

Does anyone else live in an area without doctors who treat MG? What did you do?