My Journey

I have been on this journey since March of '25 and, so far, am triple seronegative. I had a positive reaction during an EMG, but the neurologist administering it wanted to continue testing, as if he was not convinced it was definitely positive, or specifically positive for MG.

I was later sent to another neurologist who performed a single fiber EMG (SFEMG). There was an indication of MG in my frontalis muscle, but it requires more study. That results in two "maybe positives" for MG.

Seeking a Specialist Opinion

In the meantime, I made an appointment at a nearby university with a neurologist who specializes in MG. She almost immediately stated that I do NOT have MG. Instead, she is conducting further studies related to my imbalance and muscle incoordination. She also prescribed a complete sleep study, as my insomnia could possibly be causing some of my symptoms.

Current Outlook and Next Steps

I was 99% convinced I had MG months ago, so this negative diagnosis was quite a disappointment. I was hoping to get a definitive diagnosis so I could move forward with treatment. Now I'm in a funk, wondering if I will ever know what is going on. I do have an upcoming appointment with one more neurologist who specializes in MG on February 2, so we'll see what he has to say. It's difficult to stay positive, but I'm trying.