MG Second Time Around

In the past, I was on Mestinon and CellCept but not prednisone, since my neurologist knew I was also fighting to keep my blood sugar levels down as well. I stayed on those meds for eight years at a lower and lower dosage as time went on.

Facing round two

Eventually, symptoms crept back in and I was put on high doses of the Mestinon and CellCept and now prednisone was added. However, this time my symptoms were even more pronounced with a head I could not hold up.

I needed help just to walk to my vehicle to get an infusion of Soliris. I did not get that infusion -- instead I was hospitalized, and it was during the Covid pandemic. I was having trouble testing, but did not have Covid, thank goodness. I was released and continued my infusions.

My life is different now

I have definitely lost my strength and just could not make it into work, so I have retired and it has been eight months now. I just had my 60th high school reunion, and going to the events really has worn me out. It took me probably a week to recover.

I just have to accept the fact that I need help now in doing things. I've injured myself and hurt my shoulders badly thanks to several serious falls, and I really am not able to do much due to the myasthenia. Soon I will see an orthopedist again in hopes they can help me.

Let's keep moving forward

You just have to have faith and keep going, take your medicine and be open with your doctors. I have a very good neurologist from a widely-known group and I have a very good family physician who is always willing and open to listening to me.