Muscle cramping
I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the day. AcHR and MuSK were both negative but I asked for some additional tests before we rule out MG.
My main question revolves around muscle cramping. I'm addition to profound muscle weakness at times, I have intense muscle cramping (mostly in the legs but also sometimes in the arms). It feels like my muscles are trying to contort in an unnatural way and I am unable to relax them. Afterwards they will be so sore and it feels like I did a really intense workout. If I try to use that muscle after it will burn and become numb and weak within minutes.
My muscles ache reflexes are also very sensitive. A gentle touch can cause then to spasm.
Does anyone with MG experience this? Or should I be considering different diseases?
Just last night I was up at 3,4,5am with such crippling cramps in my calf’s and feet that made them contort to unnaturally positions. I found myself in tears and having to walk the halls just to get some relief. I called my neurologist today and they said it could be from Mestinon. I am going to take smaller doses and more of them to see if this helps.
I used to but now if I drink some electrolytes every day they are very rare.
I’ll have to try that. I think I have some somewhere. Thanks for the tip!
Every night and when I lay down in the afternoon.
Yes but my doctors claim it it a Mestinon reaction. Who do you believe?
