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Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized?

What treatment, if any, has helped you see any improvement?

If you had ocular MG that turned generalized, how long did the treatment keep your MG at an ocular level/type?

  1. Mestinon has not helped and a level 1 prism in left eye has helped a little. New diagnosis at 65yr and wondering if any other meds have helped with ocular MG. I can manage now but of course don’t want it to get worse and research says treatment can help it not get worse… but also worry of side effects. I will see a neuro muscular specialist soon

    1. Hello hopefully others will chime in with what treatments they have found helpful. Please keep in mind everyone is different. I hope your upcoming appointment will be helpful. In the meantime, I shared an article on ocular MG that may be of interest - https://myasthenia-gravis.com/ocular. Please feel free to reach out anytime. We are here to support you in any way we can. Kindly, Jessica (Team Member)

  2. Ryedrops & reading glasses, so.as not to tire my vision, also not
    spending long periods of time reading.

    1. We appreciate you sharing what has worked for you!
      Jodi, Team Member

  3. Mestanon and eye drops for my extreme dry eyes

    1. I am glad to hear that you found something that works well for you. 😀 It's been a while since we've heard from you. How have you been the past few months?
      Jodi, Team Member

  4. Acetazolamide

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