Active yesterdayRituxan (Rituximab) users and past users, how has your experience been with Rituxan? Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...Reactions 0 reactions Comments0 repliesRefractory MGTreatmentTips & Advice
Active yesterdayUltomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...Reactions 0 reactions Comments0 repliesTreatmentRefractory MGTips & Advice
Active yesterdayLeg and Foot Cramping and PainMany individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...Reactions 0 reactions Comments266 repliesSleepSide EffectsSymptoms
Active 3 days agoProblemsI am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc. Since i cannot do much physical exercise, I...Reactions 0 reactions Comments3 replies
Active 3 days agoStruggling with Constipation?Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...Reactions 0 reactions Comments0 repliesAwarenessTreatmentTips & Advice
Active 3 days agoUnsuccessful Prednisone TaperHas your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...Reactions 0 reactions Comments0 repliesTreatmentAwarenessNewly Diagnosed
Active 3 days agoWhat was the first treatment your doctor prescribed for MG?Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys....Reactions 0 reactions Comments12 replies
Active 3 days agoDo you have problems swallowing?Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...Reactions 0 reactions Comments17 repliesSymptomsDiet & NutritionMuscle Weakness
Active 3 days agoToll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions 0 reactions Comments69 repliesSide EffectsTreatmentNewly Diagnosed
Active 4 days agoHow old were you when you were diagnosed with MG?Add any other details you'd like to share!...Reactions 0 reactions Comments94 repliesDiagnosis