Active 6 days agoMuscle and neck painDoes anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....Reactions 0 reactions Comments26 replies
Hand swelling and tingling I am in the middle of an MG Crisis. In 10 Days I will start my second series of Vyvgart. I am wondering if anyone has had hand swelling and...Reactions 0 reactions Comments2 repliesGeneralized MG
Symptoms: shakiness?One of my most irksome symptoms is extreme shakiness, especially in my hands, but occasionally through my whole body. I’ve been surprised that there haven’t been others complaining about shakiness...Reactions 0 reactions Comments4 replies
Losing My VoiceI'm Seronegative and have been losing my voice on and off for the past couple of months with no changes in medication or other factors such as a secondary illness...Reactions 0 reactions Comments0 repliesSeronegativeSpeech
Mestinon in NYCHi all, I’ve been prescribed Mestinon 60mg and I’m having trouble finding it at any pharmacy. Walgreens has none in stock in the whole of NYC. Any advice on finding...Reactions 0 reactions Comments0 replies
Do you experience worse MG symptoms during menstruation (your period)?During the menstruation phase of your menstrual cycle (period), do you experience aggravated MG symptoms? Does anything provide you some relief?...Reactions 0 reactions Comments0 repliesAwarenessTips & AdviceTriggers
FeaturedDoes Anything Help Your Double Vision And/or Droopy Eyes?Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.? - Jodi, Team Member...Reactions 0 reactions Comments83 repliesOcular MGDrivingVision
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...Reactions 0 reactions Comments100 repliesSeronegativeTreatmentDiagnosis
Negative Hospital Experience With MG?Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...Reactions 0 reactions Comments2 repliesSurgeryAwarenessNewly Diagnosed
Shaking (tremor) and myastheniaHello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...Reactions 0 reactions Comments24 repliesSymptomsMuscle Weakness