Juliana Texley

With a condition like myasthenia gravis (MG), it’s easy to become glued to a recliner and watch way too much television. But it doesn’t even require a condition to develop...

One of the hardest parts of living with a rare disease are those awkward explanations. Myasthenia gravis (MG) doesn’t always come with a limp or a rash. It sometimes comes...

We'll admit it now. We put it off. The definitive test that would have helped my hubby's team close in on a diagnosis of seronegative myasthenia gravis was put off way...

I'm one of the few who hates the song "Have a Holly, Jolly Christmas." For huge numbers of us, the idea that the season must be endlessly jolly is way...

One of the hardest things about advocating for a patient with a rare disease is the uncertainty of the information that we want to share. Only about 14 in every...

The days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more...

After almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares...

Myasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your meds, follow doctors’ orders, and symptoms seem to...

Everyone has those moments. You are surprised by a comment. It could be from a stranger or a close acquaintance. They say something about your visible symptoms or limitations. Or they...

With a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require a lot of preparation and a surprising level...

There is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you do and what you get are related. A...

A rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated and starved for good contacts. In a world...

Like many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were wintering in a southern state. He discussed that...

They say that "hindsight is 20/20." In the case of my husband's myasthenia gravis (MG), his sudden loss of 20/20 vision should have been our first clue to the possibility...

There’s an old joke going around: "If you discuss politics at the Thanksgiving table, you will have fewer Christmas gifts to buy." It certainly doesn’t reflect family values! But sometimes...

We sometimes reminisce about "good old days." Just a few years ago we traveled constantly both for pleasure and as part of our obligations for an association. It’s hard to...

Myasthenia gravis (MG) often creates sudden changes in lifestyle. People who had been constantly active find themselves trapped. Projects that would have filled long days can be exhausting, and the lure...

With a diagnosis of myasthenia gravis comes medication. The most common treatment is Mestinon (pyridostigmine). This drug targets the defect in communication at the junction of the nerve and muscle...

The first symptoms of myasthenia gravis often involve vision, but problems with swallowing can soon follow. Swallowing is a complex process that involves over 30 nerves and muscles. So it’s...