Can Anybody Understand?I have myasthenia gravis (MG)! Each minute of each day can change rapidly, leaving my life in limbo when it comes to what I'm able to do. Sometimes daily life...Reactions0reactionsComments5 comments
My Experiences with Doctors and MisdiagnosisIt's been a long hard battle for a diagnosis over the years. The past 2 years have been both the best and the worst. After 10 years of remission from...Reactions0reactionsComments5 comments
Domestic and Sexual Abuse in People with DisabilitiesEditor's note: Content warning - This article includes experiences with sexual assault, domestic abuse, and violence. I am former Certified Domestic Abuse Advocate of 10 years, and I also have...Reactions0reactionsComments0 comments
I Was Prescribed MG Cautionary DrugsIn previous articles, I've talked about having the symptoms of myasthenia gravis (MG) for 48 years before being diagnosed. At times these symptoms were quite severe. Now in my 60...Reactions0reactionsComments2 comments
A Break in the ChaosThis whole week so far has been wonderful! The temperature outside is 90 degrees but it feels like it's 100 degrees. Tomorrow it's supposed to be even hotter. I can't...Reactions0reactionsComments0 comments
Massage Therapy School and Myasthenia GravisIt took doctors 48 years to diagnose me with myasthenia gravis (MG). During this time, I had a lot of flares. They all looked a little different than what MG...Reactions0reactionsComments0 comments
Excited for SpringIt's spring here and I'm rather excited! Now, that might seem strange to say being that I have myasthenia gravis (MG) and I can't do a lot. Although my medications...Reactions0reactionsComments2 comments
Pillow Packin'Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt so bad at times that I could not...Reactions0reactionsComments7 comments
Having Myasthenia Gravis, COVID, and PneumoniaWhile I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis (MG). In January 2021, I was in a...Reactions0reactionsComments5 comments
My Life with Myasthenia GravisAs best as I remember, my symptoms started around age 10. My first symptom was difficulty using my hands and fingers along with extreme constipation. It was to the point...Reactions0reactionsComments4 comments
PrisonerI am a prisoner! In prison for life... no crime committed. I am not in an actual prison. But a prisoner of my own body with a disease there is...Reactions0reactionsComments0 comments
Undergoing Multiple Major SurgeriesAlthough I was just was diagnosed with myasthenia gravis (MG) in October of 2020, I had symptoms most of my life. At times, they were severe and included breathing problems...Reactions0reactionsComments2 comments
Facing Surgery with a Diagnosis of Myasthenia GravisI have had 3 prior surgeries, all while experiencing the same symptoms that I currently have. The difference now is that I have been officially diagnosed with myasthenia gravis (MG)...Reactions0reactionsComments0 comments
I'm a Rag DollRag dolls are made out of cloth and slightly stuffed. When you set one down, they just kind of crumple into a heap. They cannot be posed into any form...Reactions0reactionsComments13 comments
Dealing with Transportation IssuesOne of the things I have found hard to deal with while living with myasthenia gravis is transportation. There are times when I am unable to drive myself and family...Reactions0reactionsComments4 comments
More Helpful Cooking Solutions for Myasthenia GravisIn case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us who eat and cook meat, standing over a...Reactions0reactionsComments0 comments
Reinventing Myself with Myasthenia GravisAh, being alive and having the energy to do the things that you want to do! Or at least that's what we see portrayed on TV. But then again, TV...Reactions0reactionsComments3 comments
My Cooking Tips for Myasthenia GravisI have always cooked from scratch. Growing, harvesting, and preserving my own fruits and vegetables. In years past, that also included grinding my own grains for flour. Including acorn flour...Reactions0reactionsComments2 comments
A Glimmer of HopeIn October of 2020, I was officially diagnosed with what my neurologist said, "for now we are calling it seronegative myasthenia gravis." He also believed there was something else going...Reactions0reactionsComments3 comments
My Journey to Buy a Mobility DeviceMy journey to use mobility devices began when I could not get out and enjoy things like shopping, going to a park, or hiking. Although sometimes it is an issue...Reactions0reactionsComments1 comments