Encouragement from Strangers
For the most part, writing articles about my life with myasthenia gravis (MG) is pretty easy to do. I have read once that to be a good writer, you write about things you know. When you live with a health condition like myasthenia gravis, you really do get to know it pretty intimately!
People with MG are all different, that's why we're called snowflakes, but a lot of the things we struggle with are still the same.
Reading about MG experiences
So, how do I get encouragement from strangers through the myasthenia gravis struggles? The first way is by reading the Myasthenia-Gravis.com articles that other people have written about their life with MG. The struggle may be a little different from person to person, but in the end, we all go through a certain amount of "hell" (for lack of a better word.)
All the ups and the downs and the twists and the turns ... and that's just to get a diagnosis, let alone daily life with MG. Truly, it's a wonder any of us are still sane!
Comments and reactions
The best encouragement I get is from you - the ones that read the articles, but even better, those who leave comments! Whether it be an emoji, GIF, a thumbs up, a heart, or a sad face ... the sharing is good and I love that!
When Myasthenia-Gravis.com community members write a few short sentences, or even a full paragraph of what they are living through, all of that helps build common ground between us. For me, it makes me feel less alone and it gives me the freedom to be honest and open about what I am going through.
Providing support
The comments and reactions community members share give me clues on what to write about. Including things that I may not have thought about that would make a helpful article.
All of our struggles are a little different. Whether it's fatigue, vision, mobility, or treatment. As the writer, I can only write from my own experience. The comments help show more than one side of myasthenia gravis and the daily struggles that can come with this ever-changing chronic health condition.
Building a community
Picture a place where we can be open about what we're thinking, feeling, and going through with myasthenia gravis. This is the place we are all creating together! I personally could not find the encouragement to keep writing articles without you, the readers, and your participation in this community.
When we are able to be open and honest in our support for one another, we are also turning strangers into friends. During my rough patches with myasthenia gravis, I have somewhere to turn. The people who understand the condition will help build me up and not tear me down.
I know I can write about pretty much anything I am going through with MG, and all of you would understand where I am coming from. One of the biggest things to remember is that we are not alone!
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