Recently Starting Advanced Therapy: Realities of the First MonthsMaking the final leap to start an advanced gMG therapy—whether it's an IV infusion or a subcutaneous injection—is a psychological milestone. The...reactionscomments
Established on Treatment: Long-Term Management & The Choice to SwitchBeing established on a gMG plan requires a balancing act of daily symptom tracking, medication management, and routine check-ins. But stability can...reactionscomments
Reclaiming Your Freedom: Modern Ways to Get Myasthenia Gravis TreatmentLiving with myasthenia gravis (MG) often means planning your whole life around treatment. For many people, that has meant long trips to...reactionscomments
Considering Advanced Therapy: Evaluating the Next Step in Your MG JourneyWhen standard first-line therapies like Mestinon or steroids aren't providing enough symptom control, the conversation shifts toward advanced therapies, such as targeted...reactionscomments
The Real Measure of a gMG Treatment Discussion Isn't What Your Doctor Says: It's What You Take HomeThere is immense value when a neurologist takes the time to explain complex options clearly and understandably. But we know that clinical...reactionscomments
Newly Diagnosed: Navigating Your First Myasthenia Gravis Treatment StepsThe days and weeks following a generalized Myasthenia Gravis (gMG) diagnosis can feel like a whirlwind. Between processing the news and sitting...reactionscomments
Unpredictable Fatigue With Myasthenia GravisOne of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or...reactions39comments
Speaking Out for Myasthenia GravisWhat does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of...reactionscomments
June is MG Awareness Month! Let’s Be Proactive!June is Myasthenia Gravis (MG) Awareness Month. Every year the MG community strives to create awareness, turning it into action by making...reactions2comments
I Refused to Let MG Control My LifeI had my first MG symptoms (flare-ups lasting 2-3 months each) in early 2020. It was classified as Late-Onset MG. Immediately I...reactionscomments
How I Try to Tell the Difference Between MG Fluctuations and ProgressionOne of the hardest parts of living with Myasthenia Gravis, at least for me, is trying to figure out what’s a normal...reactions6comments
What MG Patients Really Want Their Neurologists to AskFor those living with Myasthenia Gravis (MG), a visit to the neurologist often follows a predictable script. There are strength tests, eye...reactions9comments
How to Cope With Unpredictable and Fluctuating SymptomsDealing with unpredictable and fluctuating symptoms can be quite scary and quite a headache if we want to be honest. You never...reactionscomments
Life Will Never Be the SameThere is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and...reactions20comments
My Seronegative MG Journey With PrednisoneWhen I was first diagnosed with Myasthenia Gravis (MG), I was in the middle of a severe flare-up. It was so bad...reactions1comment
Vaccines Before Treatment: How Our MG Community PreparesStarting a new treatment for myasthenia gravis (MG) can bring a wave of hope, but it also requires careful preparation. Many treatments...reactionscomments
Navigating Housework and Chores With Myasthenia GravisFor most people, chores like vacuuming the rug, folding a basket of laundry, or scrubbing the shower are mundane annoyances—tasks to be...reactionscomments
Myasthenia Gravis Complications and Your Life ExpectancyMyasthenia gravis (MG) is an autoimmune condition that impacts the way nerves and muscles communicate. The body mistakenly attacks itself, leading to...reactions41comments
How to Stay Safe During Warm and Humid Weather With MGIt is, ultimately, impossible to avoid warm weather outings when you live with MG. We all know the heat and humidity can...reactions1comment
Help Us Understand How You Make Treatment DecisionsWhen you were first diagnosed with myasthenia gravis, the mental load was probably enormous. New terminology. New specialists. New medications. New unknowns...reactions9comments