Empowering Affirmations for Navigating Life with Myasthenia GravisLiving with a chronic illness can be challenging, both physically and emotionally. I've found that speaking to myself kindly and positively helps counteract negative doubts and worries. Affirmations can immensely...Reactions0reactionsComments0 comments
Changes in Facial Expression With Myasthenia GravisThe autoimmune condition myasthenia gravis (MG) may cause changes in a person’s facial expressions. These changes are especially noticeable around the eyes and mouth. In severe cases, the changes can...Reactions0reactionsComments0 comments
Embracing Movement: My Personal Journey with Adaptive YogaLiving with myasthenia gravis (MG) can make us question our physical limits. When the body feels heavy or uncooperative, even the smallest movements can feel daunting. For a long time...Reactions0reactionsComments1 comments
7 Tips for Living Alone with Myasthenia GravisWhen when I was living alone with myasthenia gravis (MG), I encountered many challenges. Although I only took on this endeavor after my symptoms were somewhat under control with treatment...Reactions0reactionsComments1 comments
Strategies for Coping With a Rare Disease Like Myasthenia GravisWhen you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have myasthenia gravis (MG), there may be a lack of information...Reactions0reactionsComments1 comments
Daily Life with MG: Perception Versus RealityIn order to spread awareness about myasthenia gravis (MG), I think it's essential to delve into the perception of MG versus the reality and shed light on the everyday lives...Reactions0reactionsComments3 comments
The Exhaustion of CaregivingI have myasthenia gravis (MG) and over the past year I have been a caregiver to my husband throughout several illnesses, which included taking care of him while he was...Reactions0reactionsComments0 comments
The Challenge of Understanding What Triggers MGSince my myasthenia gravis (MG) first manifested 4 years ago, I’ve tried to wrap my head around how it started, and since then, what repeatedly causes my flare-ups or exacerbations...Reactions0reactionsComments22 comments
What Are the Risks of IVIG?Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG). However, this treatment is associated with certain risks...Reactions0reactionsComments13 comments
Photophobia / Light SensitivityMyasthenia gravis (MG) is an autoimmune disease that causes muscle weakness. One of the symptoms of MG is light sensitivity, officially called photophobia. This can cause a strong dislike of...Reactions0reactionsComments8 comments
Are At-Home IVIG Treatments Right for You?Intravenous immunoglobulin (IVIG) is also known as gamma globulin. IVIG is used to treat a variety of autoimmune conditions, including myasthenia gravis (MG). IVIG boosts the number of healthy antibodies...Reactions0reactionsComments0 comments
Community Perspectives on MG SymptomsMyasthenia gravis (MG) is a condition that causes muscle weakness. But weakness is not the only symptom of MG. In fact, it can be hard to diagnose MG because the...Reactions0reactionsComments0 comments
5 Activities to Try When Recovering from Thymectomy SurgeryAfter my thymectomy surgery, getting plenty of rest and sleep was a soothing and natural way to manage my discomfort. Pain is common after surgery - I had pain in...Reactions0reactionsComments0 comments
Life After MG?It has been about 4 years since I was initially diagnosed with myasthenia gravis (MG). And now, 3 years after my thymectomy surgery. All is well, and my neurologist thinks...Reactions0reactionsComments11 comments
Coping with Excessive Heat and HumidityI’ve had myasthenia gravis (MG) for several years now and I know people with MG can have issues with hot or cold temperatures. Personally, I've had some issues with humidity...Reactions0reactionsComments0 comments
How I Exercise Safely with MGWhen I was first diagnosed with myasthenia gravis (MG), I couldn't lift my arms above my head 10 times. Fortunately, my MG weakness improved with treatment and lifestyle changes. But...Reactions0reactionsComments0 comments
Creating The Perfect Hospital Bag for Myasthenia GravisLiving with myasthenia gravis (MG) can mean frequent hospital visits, especially for those of us on immunosuppressants. In my experience, what might seem like a minor infection or cold can...Reactions0reactionsComments6 comments
Ways to Manage MG FatigueFatigue is what doctors call feeling exhausted or lacking mental or physical energy. It may also mean you cannot continue activities as long as you would like. It is 1...Reactions0reactionsComments3 comments
How to Make the Most of Online Healthcare Patient PortalsPatient portals are websites offered by healthcare providers to help you manage your health. I have been familiar patient portals since high school. I started using them to make doctor's...Reactions0reactionsComments0 comments
Why Dealing With All Of My MG Medicines Can Be OverwhelmingTaking medicine for myasthenia gravis (MG) can be so difficult. I have MG and I take prednisone and pyridostigmine (Mestinon) to treat it. But as so many of you know...Reactions0reactionsComments1 comments