Strategies for Coping With a Rare Disease Like Myasthenia GravisWhen you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have myasthenia gravis (MG), there may be a lack of information...reactions7comments
Daily Life with MG: Perception Versus RealityIn order to spread awareness about myasthenia gravis (MG), I think it's essential to delve into the perception of MG versus the reality and shed light on the everyday lives...reactions3comments
The Exhaustion of CaregivingI have myasthenia gravis (MG) and over the past year I have been a caregiver to my husband throughout several illnesses, which included taking care of him while he was...reactionscomments
The Challenge of Understanding What Triggers MGSince my myasthenia gravis (MG) first manifested 4 years ago, I’ve tried to wrap my head around how it started, and since then, what repeatedly causes my flare-ups or exacerbations...reactions25comments
What Are the Risks of IVIG?Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG). However, this treatment is associated with certain risks...reactions15comments
Photophobia / Light SensitivityMyasthenia gravis (MG) is an autoimmune disease that causes muscle weakness. One of the symptoms of MG is light sensitivity, officially called photophobia. This can cause a strong dislike of...reactions8comments
Are At-Home IVIG Treatments Right for You?Intravenous immunoglobulin (IVIG) is also known as gamma globulin. IVIG is used to treat a variety of autoimmune conditions, including myasthenia gravis (MG). IVIG boosts the number of healthy antibodies...reactionscomments
Community Perspectives on MG SymptomsMyasthenia gravis (MG) is a condition that causes muscle weakness. But weakness is not the only symptom of MG. In fact, it can be hard to diagnose MG because the...reactionscomments
5 Activities to Try When Recovering from Thymectomy SurgeryAfter my thymectomy surgery, getting plenty of rest and sleep was a soothing and natural way to manage my discomfort. Pain is common after surgery - I had pain in...reactionscomments
Life After MG?It has been about 4 years since I was initially diagnosed with myasthenia gravis (MG). And now, 3 years after my thymectomy surgery. All is well, and my neurologist thinks...reactions13comments
Coping with Excessive Heat and HumidityI’ve had myasthenia gravis (MG) for several years now and I know people with MG can have issues with hot or cold temperatures. Personally, I've had some issues with humidity...reactionscomments
How I Exercise Safely With MGWhen I was first diagnosed with myasthenia gravis (MG), I couldn't lift my arms above my head 10 times. Fortunately, my MG weakness improved with treatment and lifestyle changes. But...reactions10comments
Creating The Perfect Hospital Bag for Myasthenia GravisLiving with myasthenia gravis (MG) can mean frequent hospital visits, especially for those of us on immunosuppressants. In my experience, what might seem like a minor infection or cold can...reactions6comments
Ways to Manage MG FatigueFatigue is what doctors call feeling exhausted or lacking mental or physical energy. It may also mean you cannot continue activities as long as you would like. It is 1...reactions3comments
How to Make the Most of Online Healthcare Patient PortalsPatient portals are websites offered by healthcare providers to help you manage your health. I have been familiar patient portals since high school. I started using them to make doctor's...reactionscomments
Why Dealing With All Of My MG Medicines Can Be OverwhelmingTaking medicine for myasthenia gravis (MG) can be so difficult. I have MG and I take prednisone and pyridostigmine (Mestinon) to treat it. But as so many of you know...reactions15comments
What Is the Autoimmune Protocol Diet, and Can It Help MG?Myasthenia gravis (MG) is an autoimmune condition caused by the immune system attacking your own body. For some people, making certain changes in diet may support the immune system and...reactions2comments
Learning to Love Convenience Vegetables: Cooking With MGLong before myasthenia gravis (MG) and the eat-everything-imperative of prednisone entered my life, I loved food. Not necessarily cooking, but definitely eating. I never considered myself a real foodie —...reactions6comments
Leaving My Dream Career after Myasthenia GravisI became very passionate about archaeology before applying to colleges. I was utterly excited to pursue it as a career. In addition to my college courses, I spent many hours...reactionscomments
My Myasthenia Gravis AwakeningIn this article I describe how I grappled with the emotions of learning that I had an incurable disease and how I was motivated to confront and overcome what I...reactions8comments
