MG Medication and Navigating the "Donut Hole"I’ve been on mycophenolate mofetil (generic of CellCept) for myasthenia gravis (MG) for several years now. I’ve never had an issue with...reactions10comments
How I Can Tell If My MG Medication is WorkingMy neurologist said some medications take approximately six or eight weeks to truly get into your system and start working. However, with...reactions1comment
Myasthenia Gravis and Mental Health: Finding Support When You Need ItSince 2020 and the world of COVID, I think it is safe to say a lot of people have become more in...reactions3comments
7 Tips for Living Alone with Myasthenia GravisWhen I was living alone with myasthenia gravis (MG), I encountered many challenges. Although I only took on this endeavor after my...reactions13comments
Finding Strength: The Power of Myasthenia Gravis AdvocacyHope is a powerful force. It carries us through the most challenging times, pushing us to seek new opportunities and advocate not...reactionscomments
Myasthenia Gravis and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactions3comments
My Complicated Relationship With Heat and MGWhen I talk about heat, I'm not just talking about the summer heat, although that's really bad with myasthenia gravis (MG). For...reactions7comments
Community Views: Having a ThymectomyOne treatment for myasthenia gravis (MG) is a thymectomy. A thymectomy is a surgery on your chest. The surgery removes the thymus...reactions9comments
How Complement Inhibitors Helped Stabilize My Condition and Change My LifeThe game of trial and error with trying new treatments for MG is a game many of us know too well. I...reactionscomments
Understanding How Your Immune System Affects Your Nerves & Muscles With MGIf you live with myasthenia gravis (MG), you know the feeling: Your muscles grow weak and tired, sometimes for no clear reason...reactionscomments
When Exercise Begins in BedWe hear it all the time: movement is good for us. Doctors recommend it. Physical therapists encourage it. Research continues to highlight...reactions1comment
Am I Glad I Got MG? Maybe...I had a life. I was healthy, the kids had grown up and moved on, and I had just retired and really...reactions1comment
Trying a New Infusion Treatment: My ExperienceWhen I started a new infusion treatment for MG, I was excited to contribute my personal data to an ongoing research study...reactionscomments
Old Symptoms, New Treatment: My Experience With Prepping for UltomirisWhen I started my Ultomiris treatments in 2023, I’d kind of reached the end of my hope for remission and had begun...reactions27comments
Newly Diagnosed: Navigating Your First Myasthenia Gravis Treatment StepsThe days and weeks following a generalized Myasthenia Gravis (gMG) diagnosis can feel like a whirlwind. Between processing the news and sitting...reactionscomments
Considering Advanced Therapy: Evaluating the Next Step in Your MG JourneyWhen standard first-line therapies like Mestinon or steroids aren't providing enough symptom control, the conversation shifts toward advanced therapies, such as targeted...reactionscomments
Recently Starting Advanced Therapy: Realities of the First MonthsMaking the final leap to start an advanced gMG therapy—whether it's an IV infusion or a subcutaneous injection—is a psychological milestone. The...reactionscomments
Established on Treatment: Long-Term Management & The Choice to SwitchBeing established on a gMG plan requires a balancing act of daily symptom tracking, medication management, and routine check-ins. But stability can...reactions3comments
Reclaiming Your Freedom: Modern Ways to Get Myasthenia Gravis TreatmentLiving with myasthenia gravis (MG) often means planning your whole life around treatment. For many people, that has meant long trips to...reactionscomments
Unpredictable Fatigue With Myasthenia GravisOne of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or...reactions40comments
