Tips for Those Newly Diagnosed with Myasthenia GravisIt can require a long journey before you finally arrive at a diagnosis of myasthenia gravis (MG). Having a rare disease can feel overwhelming and scary. You may have never...Reactions0reactionsComments0 comments
Rare In America: What's That?The "In America survey" is now closed. It can take years to receive a myasthenia gravis diagnosis, often while experiencing frequent and debilitating symptoms. To learn more about the challenges...Reactions0reactionsComments1 comments
MG Diagnosis JourneyWhile each person with myasthenia gravis has a different diagnosis story, there are many similarities that connect our community. Find out how your experiences compare to others, and where your...Reactions0reactionsComments2 comments
Advocating For Yourself At The Doctor’s OfficeThe process of being diagnosed with a chronic health condition can often be lengthy and difficult. People with myasthenia gravis frequently have a long journey between the time they first...Reactions0reactionsComments0 comments
COVID-19 Linked To Development Of Myasthenia GravisCOVID-19 is a disease caused by infection with a novel coronavirus, called SARS-CoV-2. The most common symptoms of COVID-19 are fever, muscle aches, fatigue, congestion or runny nose, cough, breathing...Reactions0reactionsComments1 comments
Thymectomy ScarsMyasthenia gravis (MG) is an autoimmune condition that causes muscle weakness. In MG, the immune system attacks the body’s nerves and muscles. This is often associated with abnormalities in an...Reactions0reactionsComments1 comments
The Invisibility and Stigma of Chronic PainPain can be classified as an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain cannot be immediately seen. Because of this, it is possible...Reactions0reactionsComments0 comments
Speaking Up for Myasthenia Gravis: A Patient Interview with ClaireSharing our experiences can help us all feel less alone while navigating life with a chronic condition such as myasthenia gravis. Patient Advocate Claire shares a bit of her journey...Reactions0reactionsComments0 comments
Speaking Up for Myasthenia Gravis: A Patient Interview with MeridithSharing our experiences can help us all feel less alone while navigating life with a chronic condition such as myasthenia gravis. Patient Advocate Meridith shares a bit of her journey...Reactions0reactionsComments0 comments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to explain how our bodies work or why our bodies stop working well. Clinical trials are...Reactions0reactionsComments0 comments
Clinical Trial GlossaryClinical trials have a language of their own. It helps to understand the common terms used when describing a clinical trial before you sign up. Here are some of the...Reactions0reactionsComments0 comments
What to Know About Participating in a Clinical TrialClinical trials are medical studies that pose a question: Does a new treatment work better than older treatments? Each year, thousands of treatments are tested in controlled experiments called clinical...Reactions0reactionsComments0 comments
