Managing Flares by Listening to My MindWhat goes on in your head all day? If you’re like me, maybe you have a constant to-do list running in the background, critical of any lazy moment. As I...reactions1comment
Helping Others Understand Myasthenia GravisBeing a member of a small minority might seem special. But when that minority represents individuals with a rare disease, the challenges are enormous. That’s certainly true with myasthenia gravis (MG)...reactions4comments
Frequently Asked Questions (FAQs) About Myasthenia GravisWhether you are living with myasthenia gravis (MG) or know someone who is, here is a guide to the basics of MG. Myasthenia gravis is a chronic autoimmune disease. Autoimmune...reactionscomments
Myasthenia Gravis Diagnosis: Still Seeking AnswersWe know that myasthenia gravis (MG) affects everyone differently. From the range and severity of symptoms to specific MG triggers, each person’s experience is unique. This can make the diagnosis...reactionscomments
Sometimes We Need Someone to ListenSometimes we just need someone to listen, to be there. Not for offering advice. Not even for consoling us or providing encouragement. Sometimes we need to have a sad day...reactions4comments
The Need for Myasthenia Gravis Awareness: MG Awareness Month 2021June marks Myasthenia Gravis Awareness Month. Together, it is time to bring awareness to how it feels to live with a rare disease like myasthenia gravis. Join us in informing...reactionscomments
Managing Flares by Listening to My HeartThe first few months after my myasthenia gravis (MG) diagnosis, I had to quit my job. My vision was consistently double and ptosis made it difficult to stare at a...reactionscomments
Considerations for Driving with Myasthenia GravisWhen the diverse symptoms of myasthenia gravis converge to a diagnosis, the many unknowns can be the hardest part. Chief among them is the question “How will my lifestyle change?”...reactionscomments
Is There Such A Thing As Bulbar Myasthenia Gravis?Myasthenia gravis (MG) can have wide-reaching effects on the body. This can lead to different symptoms and ways of classifying MG. One term that may be used is bulbar MG...reactions18comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like myasthenia gravis can...reactionscomments
Managing Flares by Listening to My BodyI am turning 30 this year, which has prompted me to start thinking about what I am taking away from my 20s. There are definitely moments I never want to...reactionscomments
Myasthenia Eyes and the Emotional TollThe first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for the previous couple of years getting worse. I...reactions29comments
What Causes Remission in Myasthenia Gravis?Myasthenia gravis (MG) is a rare, autoimmune disease that causes a person’s muscles to become weak and to tire easily. The way the disease develops is different for each person...reactions23comments
The Role of Sunscreen for Myasthenia GravisAs the warmer and sunnier days approach, it is time to be mindful of how the sun’s rays impact our bodies. Some people with myasthenia gravis (MG) are particularly at...reactionscomments
Myasthenia Gravis Can't Stop Me“You have textbook case myasthenia.” Those were the exact terms the neurologist uttered at the time of my diagnosis. The words I had been waiting for. The conversation that would...reactions7comments
Myasthenia Gravis and Sleep DisordersMyasthenia gravis (MG) causes fatigue or extreme tiredness. At the same time, many people with this autoimmune disease have trouble sleeping. Common sleep disorders for people with MG include excessive...reactions3comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...reactionscomments
The Gravis GourmetMyasthenia gravis (MG) brings challenges on many levels. Fatigue and weakness are only the beginning. Chewing and swallowing can become more difficult. Reflux is often common. Worst case, food can...reactions2comments
Finding Hope in The Midst of a PandemicI remember when the news started pouring in. Each day I fearfully anticipated the next update on a new virus taking over the world. It felt like a dark cloud...reactions2comments
A Long and Frightening Road To a Myasthenia DiagnosisI was diagnosed with myasthenia gravis in December 2008. The long road to discovering the diagnosis wasn’t just frustrating, it was a nightmare! My symptoms began on Thanksgiving Day. The...reactions7comments
