Myasthenia Eyes and the Emotional TollThe first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for the previous couple of years getting worse. I...Reactions0reactionsComments29 comments
What Causes Remission in Myasthenia Gravis?Myasthenia gravis (MG) is a rare, autoimmune disease that causes a person’s muscles to become weak and to tire easily. The way the disease develops is different for each person...Reactions0reactionsComments18 comments
The Role of Sunscreen for Myasthenia GravisAs the warmer and sunnier days approach, it is time to be mindful of how the sun’s rays impact our bodies. Some people with myasthenia gravis (MG) are particularly at...Reactions0reactionsComments0 comments
Myasthenia Gravis Can't Stop Me“You have textbook case myasthenia.” Those were the exact terms the neurologist uttered at the time of my diagnosis. The words I had been waiting for. The conversation that would...Reactions0reactionsComments7 comments
Myasthenia Gravis and Sleep DisordersMyasthenia gravis (MG) causes fatigue or extreme tiredness. At the same time, many people with this autoimmune disease have trouble sleeping. Common sleep disorders for people with MG include excessive...Reactions0reactionsComments3 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...Reactions0reactionsComments0 comments
The Gravis GourmetMyasthenia gravis (MG) brings challenges on many levels. Fatigue and weakness are only the beginning. Chewing and swallowing can become more difficult. Reflux is often common. Worst case, food can...Reactions0reactionsComments2 comments
Finding Hope in The Midst of a PandemicI remember when the news started pouring in. Each day I fearfully anticipated the next update on a new virus taking over the world. It felt like a dark cloud...Reactions0reactionsComments2 comments
A Long and Frightening Road To a Myasthenia DiagnosisI was diagnosed with myasthenia gravis in December 2008. The long road to discovering the diagnosis wasn’t just frustrating, it was a nightmare! My symptoms began on Thanksgiving Day. The...Reactions0reactionsComments6 comments
COVID Vaccines for People with Myasthenia GravisAs the COVID-19 vaccine rollout continues, you may wonder how the vaccine affects people living with long-term illnesses like myasthenia gravis (MG). Are the vaccines safe, and when will you...Reactions0reactionsComments0 comments
Maintaining Eye Health With Myasthenia GravisMyasthenia gravis (MG) is a chronic condition that often causes muscle weakness. It happens when there is an interruption in the communication between nerves and muscles. Symptoms tend to worsen...Reactions0reactionsComments21 comments
Community Views: Advice For the Newly DiagnosedReceiving a myasthenia gravis (MG) diagnosis can be a turning point. While you are no longer searching for answers when it comes to your symptoms, you now find yourself on...Reactions0reactionsComments2 comments
We're in Charge of Celebrations!There’s a classic children’s book with the name I’m In Charge of Celebrations. It’s been 25 years since I read it. I can’t say I remember the details, but the spirit...Reactions0reactionsComments0 comments
How to Navigate a Mental Health EmergencyEditor’s Note: This article was originally shared by our sister site, ParkinsonsDisease.net, and was written by Brooke Huminski. Living with a chronic condition can sometimes include the experience of co-occurring...Reactions0reactionsComments0 comments
EMG Testing for Myasthenia Gravis: What to ExpectMyasthenia gravis (MG) is a condition that affects the way nerves communicate with muscles. Diagnosing myasthenia gravis can take a while – many people end up waiting years for their...Reactions0reactionsComments2 comments
Tips for Those Newly Diagnosed with Myasthenia GravisIt can require a long journey before you finally arrive at a diagnosis of myasthenia gravis (MG). Having a rare disease can feel overwhelming and scary. You may have never...Reactions0reactionsComments0 comments
Rare In America: What's That?It can take years to receive a myasthenia gravis diagnosis, often while experiencing frequent and debilitating symptoms. To learn more about the challenges of living with myasthenia gravis, we are...Reactions0reactionsComments0 comments
MG Diagnosis JourneyWhile each person with myasthenia gravis has a different diagnosis story, there are many similarities that connect our community. Find out how your experiences compare to others, and where your...Reactions0reactionsComments2 comments
Advocating For Yourself At The Doctor’s OfficeThe process of being diagnosed with a chronic health condition can often be lengthy and difficult. People with myasthenia gravis frequently have a long journey between the time they first...Reactions0reactionsComments0 comments
COVID-19 Linked To Development Of Myasthenia GravisCOVID-19 is a disease caused by infection with a novel coronavirus, called SARS-CoV-2. The most common symptoms of COVID-19 are fever, muscle aches, fatigue, congestion or runny nose, cough, breathing...Reactions0reactionsComments1 comments