Dealing with Heat and Hot WeatherIf you live with myasthenia gravis (MG), you may have blurred vision and weakness in your arms, hands, face, and legs. You may also experience shortness of breath and fatigue...Reactions0reactionsComments6 comments
Speaking Out for Myasthenia GravisWhat does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of its existence in the world. Even basic life...Reactions0reactionsComments0 comments
What to Know About Philips CPAP and Ventilator RecallAfter many months of investigation, Philips has announced a recall notification for many of its devices. The medical device company analyzed risks related to several products, including: In the United...Reactions0reactionsComments0 comments
Myasthenia Gravis and Brain FogMyasthenia gravis (MG) is an autoimmune disease that affects the muscles of the body. The immune system creates antibodies that fight the neuromuscular junction. This is the area where a...Reactions0reactionsComments13 comments
When to Use Mobility DevicesWhen myasthenia gravis (MG) hit me, it smoldered along for the first year or so. I had some episodes of blurry vision, I was assured were migraines. The leg and...Reactions0reactionsComments14 comments
CellCept (Mycophenolate) and Myasthenia GravisEditor's Note: CellCept is used off-label to treat myasthenia gravis. Talk to your doctor about the risks and benefits of this treatment. CellCept, also known as mycophenolate mofetil, is a...Reactions0reactionsComments3 comments
Myasthenia Gravis Awareness Starts With Me"Myasthenia what?" Upon telling anyone I knew about myasthenia gravis (MG), I would often have to repeat the name multiple times, explaining what this foreign diagnosis meant. To simplify it...Reactions0reactionsComments0 comments
Difficulty Breathing: One of Many Symptoms with MGI’ve already discussed one of the first symptoms I had when this disease reared its ugly head. You can read about that in the article, Myasthenia Eyes and the Emotional...Reactions0reactionsComments17 comments
Managing Flares by Listening to My MindWhat goes on in your head all day? If you’re like me, maybe you have a constant to-do list running in the background, critical of any lazy moment. As I...Reactions0reactionsComments1 comments
Helping Others Understand Myasthenia GravisBeing a member of a small minority might seem special. But when that minority represents individuals with a rare disease, the challenges are enormous. That’s certainly true with myasthenia gravis (MG)...Reactions0reactionsComments4 comments
Frequently Asked Questions (FAQs) About Myasthenia GravisWhether you are living with myasthenia gravis (MG) or know someone who is, here is a guide to the basics of MG. Myasthenia gravis is a chronic autoimmune disease. Autoimmune...Reactions0reactionsComments0 comments
Myasthenia Gravis Diagnosis: Still Seeking AnswersWe know that myasthenia gravis (MG) affects everyone differently. From the range and severity of symptoms to specific MG triggers, each person’s experience is unique. This can make the diagnosis...Reactions0reactionsComments0 comments
Sometimes We Need Someone to ListenSometimes we just need someone to listen, to be there. Not for offering advice. Not even for consoling us or providing encouragement. Sometimes we need to have a sad day...Reactions0reactionsComments4 comments
The Need for Myasthenia Gravis Awareness: MG Awareness Month 2021June marks Myasthenia Gravis Awareness Month. Together, it is time to bring awareness to how it feels to live with a rare disease like myasthenia gravis. Join us in informing...Reactions0reactionsComments0 comments
Managing Flares by Listening to My HeartThe first few months after my myasthenia gravis (MG) diagnosis, I had to quit my job. My vision was consistently double and ptosis made it difficult to stare at a...Reactions0reactionsComments0 comments
Considerations for Driving with Myasthenia GravisWhen the diverse symptoms of myasthenia gravis converge to a diagnosis, the many unknowns can be the hardest part. Chief among them is the question “How will my lifestyle change?”...Reactions0reactionsComments0 comments
Is There Such A Thing As Bulbar Myasthenia Gravis?Myasthenia gravis (MG) can have wide-reaching effects on the body. This can lead to different symptoms and ways of classifying MG. One term that may be used is bulbar MG...Reactions0reactionsComments18 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like myasthenia gravis can...Reactions0reactionsComments0 comments
Managing Flares by Listening to My BodyI am turning 30 this year, which has prompted me to start thinking about what I am taking away from my 20s. There are definitely moments I never want to...Reactions0reactionsComments0 comments
Myasthenia Eyes and the Emotional TollThe first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for the previous couple of years getting worse. I...Reactions0reactionsComments29 comments
