Keep Calm and Spoon On

Have you ever heard of the term "spoonie?" If you know what a spoonie is, then there is a good chance you may consider yourself a spoonie or relate to others who consider themselves spoonies.

However, maybe you have never heard the term before, or maybe you have and you are not quite sure how to explain it to others. We will look at where the term originated and what it means for those who live each day with a chronic illness.

What exactly is a spoonie?

"Spoonie" is a term that refers to any person who suffers from a chronic illness. The term originated from a blog post written by Christine Miserandino called "The Spoon Theory."¹

Miserandino uses counting spoons as a metaphor to explain her ability to carry out daily tasks while living with lupus. Some days those with chronic illness have plenty of spoons. Other days, they do not have enough spoons to dish out.

The term "spoonie" has been used across social media and in real life as a way for people with chronic illnesses to connect and relate to one another.

Using the spoon theory

The spoon theory is not just used to explain life with Miserandino’s condition. It can be applied to a variety of illnesses, including myasthenia gravis (MG). MG has some visible symptoms like ptosis, but it can also have many invisible symptoms. These include fatigue, muscle weakness, and the emotional challenges they may lead to.²

On any given day, someone with MG may only have a certain amount of energy, or spoons. If a spoonie does not carefully plan their day, they could use all of their spoons before lunchtime. Everyday activities as simple as getting out of bed, showering, getting ready for the day, and eating breakfast all deplete the spoon bank.

Some mornings, people living with MG may wake up and have fewer spoons than usual. On those days, they have to be more careful about how they "spend" their spoons. Certain activities may require more than 1 spoon. Other, easier tasks may require just 1. On a low-spoon day, a person with MG may focus on these easier tasks.

#Spoonie

The spoon theory offers a way of explaining MG to others who may not understand what it is like to live with a chronic illness. The next time you are looking to explain to friends, family, or acquaintances about life with MG, try talking to them about your spoons!