Pacing Yourself, Pushing Yourself: Managing Energy With a Rare DiseaseEditor's Note: This article was written by Natalie Abbott and originally appeared on our partner site RareDisease.net. I am beginning this article on my commute train to work, starting another...reactions1comment
Aging Gracefully with Myasthenia GravisMyasthenia gravis (MG) has not been studied sufficiently in older adults. But, more and more often, MG is being found in the older population. In fact, my diagnosis came just...reactionscomments
Yoga Doesn’t Cure My Autoimmune DiseasesEditor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. "Oh, you have XYZ disease? Have you tried yoga?" Wow, if I had...reactions1comment
I Wish Society Was More Community OrientedIn the age of technology and capitalism, most adults live independently of each other. Sure, many of us live with others under one roof. But do we depend on each...reactionscomments
My Emotions, Stress, and MGRecently, I had a health crisis. While I was in the hospital, my husband fell and broke his ankle. During most of the time he was healing, we were staying...reactions12comments
I Figured Out How to Store My Extra MestinonAs many of us with myasthenia gravis (MG) know, Mestinon (pyridostigmine) is very sensitive to temperature and humidity. My prescription currently reads 120 milligrams every 3 hours while awake. Now...reactions4comments
MG Medication and Navigating the "Donut Hole"I’ve been on mycophenolate mofetil (generic of CellCept) for myasthenia gravis (MG) for several years now. I’ve never had an issue with getting any of my medication, but this past...reactions10comments
Avoiding New Diagnoses and Routine HealthcareI have a dilemma. I put my focus and energy into staying on top of my myasthenia gravis (MG) healthcare. But then consequently, I lose focus on other aspects of...reactions9comments
I Can be Rebuilt: Cataract SurgeryAs a kid I remember watching TV shows about people being rebuilt bionically. Now here I am, cataract surgery in both eyes, getting shots in my lumbar and cervical spine...reactionscomments
Inclusivity and Rare Diseases: 6 Things for Friends and Family to ConsiderEditor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. Social situations can be very difficult to navigate with a rare disease or...reactionscomments
My Animal Testing Morals and Myasthenia Gravis: Finding PeaceAlmost everyone will require medical treatment at some point throughout life. But for those like me, who have strong values in support of a cruelty-free world, it creates a moral...reactionscomments
The Challenges of Living Away from HomeI have myasthenia gravis (MG), and even though I’m partially confined to a wheelchair/power chair, I can still walk with the aid of a walker or rollator. I can also...reactions3comments
Life Will Never Be the SameThere is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and think, hmm ... depression? No, it's not depression...reactions14comments
Learning Everything I Can About Myasthenia GravisIn this guest post, Mike Stabile talks about how he has navigated the past few years since his myasthenia gravis (MG) diagnosis. After vowing to learn everything he could about...reactions36comments
Preparing for Winter Travel with MGTraveling anytime is trying at best, but winter travel can be quite challenging. I have done a lot of travel before and after my myasthenia gravis (MG) diagnosis. When we...reactions1comment
My Favorite Activities: Trying Not to Let MG Hold Me BackSo many times, we have to give up some things we love or love to do when we are diagnosed with a life-altering disease like myasthenia gravis (MG). Well, I’m...reactions1comment
Choosing Compassion When We Don't Know People’s IntentionsWith Thanksgiving approaching, I encourage you to welcome this season as a reevaluation period. Similar to the basics of "treating others how we wish to be treated," we want to...reactions7comments
Feeling Better Versus Coping Better: How to Tell the DifferenceEditor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. Living with chronic illness, we are often evaluated on how well we are...reactions1comment
My Experience with a Modified Barium SwallowI’ve had chewing and swallowing issues on and off for years. I was prescribed a modified barium swallow study (MBSS) so the doctors could figure out why I was choking...reactions7comments
Will My Disability Benefits Change If My Diagnosis Changes?Getting approved for disability benefits from the US Social Security Administration (SSA) can take a lot of paperwork and patience. But you may be also wondering: What if my diagnosis...reactionscomments