Managing the Frustration of Being in an MG Flare During a Busy Season of LifeThere’s never really a good time for a flare, but some seasons feel especially impossible. For me, this is one of them...reactionscomments
Pacing Yourself, Pushing Yourself: Managing Energy With a Rare DiseaseEditor's Note: This article was written by Natalie Abbott and originally appeared on our partner site RareDisease.net. I am beginning this article...reactions1comment
How I Try to Tell the Difference Between MG Fluctuations and ProgressionOne of the hardest parts of living with Myasthenia Gravis, at least for me, is trying to figure out what’s a normal...reactions7comments
MG Medication and Navigating the "Donut Hole"I’ve been on mycophenolate mofetil (generic of CellCept) for myasthenia gravis (MG) for several years now. I’ve never had an issue with...reactions10comments
How I Can Tell If My MG Medication is WorkingMy neurologist said some medications take approximately six or eight weeks to truly get into your system and start working. However, with...reactions1comment
Preparing for and Managing MG Muscle WeaknessA myasthenia gravis (MG) trigger is anything that makes MG symptoms worse. Everyone's triggers can be different, but understanding what worsens your...reactions14comments
Myasthenia Gravis and Mental Health: Finding Support When You Need ItSince 2020 and the world of COVID, I think it is safe to say a lot of people have become more in...reactionscomments
7 Tips for Living Alone with Myasthenia GravisWhen I was living alone with myasthenia gravis (MG), I encountered many challenges. Although I only took on this endeavor after my...reactions12comments
Finding Strength: The Power of Myasthenia Gravis AdvocacyHope is a powerful force. It carries us through the most challenging times, pushing us to seek new opportunities and advocate not...reactionscomments
Myasthenia Gravis and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactions3comments
My Complicated Relationship With Heat and MGWhen I talk about heat, I'm not just talking about the summer heat, although that's really bad with myasthenia gravis (MG). For...reactions7comments
Community Views: Having a ThymectomyOne treatment for myasthenia gravis (MG) is a thymectomy. A thymectomy is a surgery on your chest. The surgery removes the thymus...reactions9comments
How Complement Inhibitors Helped Stabilize My Condition and Change My LifeThe game of trial and error with trying new treatments for MG is a game many of us know too well. I...reactionscomments
Ways I Save Energy Around the House With Myasthenia GravisLiving with Myasthenia Gravis has forced me to look at energy differently. Before MG, energy felt endless or at least predictable. Now...reactions2comments
When Exercise Begins in BedWe hear it all the time: movement is good for us. Doctors recommend it. Physical therapists encourage it. Research continues to highlight...reactions1comment
Am I Glad I Got MG? Maybe...I had a life. I was healthy, the kids had grown up and moved on, and I had just retired and really...reactions1comment
Trying a New Infusion Treatment: My ExperienceWhen I started a new infusion treatment for MG, I was excited to contribute my personal data to an ongoing research study...reactionscomments
Old Symptoms, New Treatment: My Experience With Prepping for UltomirisWhen I started my Ultomiris treatments in 2023, I’d kind of reached the end of my hope for remission and had begun...reactions27comments
Unpredictable Fatigue With Myasthenia GravisOne of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or...reactions39comments
Speaking Out for Myasthenia GravisWhat does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of...reactionscomments
