Ways I Save Energy Around the House With Myasthenia GravisLiving with Myasthenia Gravis has forced me to look at energy differently. Before MG, energy felt endless or at least predictable. Now...reactionscomments
When Exercise Begins in BedWe hear it all the time: movement is good for us. Doctors recommend it. Physical therapists encourage it. Research continues to highlight...reactions1comment
Am I Glad I Got MG? Maybe...I had a life. I was healthy, the kids had grown up and moved on, and I had just retired and really...reactions1comment
Trying a New Infusion Treatment: My ExperienceWhen I started a new infusion treatment for MG, I was excited to contribute my personal data to an ongoing research study...reactionscomments
Old Symptoms, New Treatment: My Experience With Prepping for UltomirisWhen I started my Ultomiris treatments in 2023, I’d kind of reached the end of my hope for remission and had begun...reactions27comments
Unpredictable Fatigue With Myasthenia GravisOne of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or...reactions39comments
Speaking Out for Myasthenia GravisWhat does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of...reactionscomments
June is MG Awareness Month! Let’s Be Proactive!June is Myasthenia Gravis (MG) Awareness Month. Every year the MG community strives to create awareness, turning it into action by making...reactions2comments
I Refused to Let MG Control My LifeI had my first MG symptoms (flare-ups lasting 2-3 months each) in early 2020. It was classified as Late-Onset MG. Immediately I...reactionscomments
How I Try to Tell the Difference Between MG Fluctuations and ProgressionOne of the hardest parts of living with Myasthenia Gravis, at least for me, is trying to figure out what’s a normal...reactions7comments
What MG Patients Really Want Their Neurologists to AskFor those living with Myasthenia Gravis (MG), a visit to the neurologist often follows a predictable script. There are strength tests, eye...reactions9comments
How to Cope With Unpredictable and Fluctuating SymptomsDealing with unpredictable and fluctuating symptoms can be quite scary and quite a headache if we want to be honest. You never...reactionscomments
Life Will Never Be the SameThere is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and...reactions20comments
My Seronegative MG Journey With PrednisoneWhen I was first diagnosed with Myasthenia Gravis (MG), I was in the middle of a severe flare-up. It was so bad...reactions1comment
Navigating Housework and Chores With Myasthenia GravisFor most people, chores like vacuuming the rug, folding a basket of laundry, or scrubbing the shower are mundane annoyances—tasks to be...reactionscomments
Myasthenia Gravis Complications and Your Life ExpectancyMyasthenia gravis (MG) is an autoimmune condition that impacts the way nerves and muscles communicate. The body mistakenly attacks itself, leading to...reactions41comments
How to Stay Safe During Warm and Humid Weather With MGIt is, ultimately, impossible to avoid warm weather outings when you live with MG. We all know the heat and humidity can...reactions1comment
Help Us Understand How You Make Treatment DecisionsWhen you were first diagnosed with myasthenia gravis, the mental load was probably enormous. New terminology. New specialists. New medications. New unknowns...reactions9comments
My Seronegative MG Treatment UpdateI've been living with myasthenia gravis for 6 years, and I've had to learn how to navigate a lot. Every day is...reactions2comments
Can Myasthenia Gravis Go Into Remission?I am currently in remission, defined by the Myasthenia Gravis Foundation of America as "a person [who has] no signs or symptoms...reactionscomments
