Where Did This Come From?Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years. It started with double... By CommunityMember9ed8661 min readBookmark for laterReactions 0 reactions Comments6 comments
First CrisisI was a newbie. Just diagnosed in March of 2021. I was put on Mestinon and started my birthday trip to several cities in early July. As it began, my... By Mike morris2 min readBookmark for laterReactions 0 reactions Comments3 comments
40 Years Too LongI was 28 at the time I started getting weak and falling. All the doctors I saw had no idea of what was wrong. The first doctor I went to... By CommunityMember14eebf1 min readBookmark for laterReactions 0 reactions Comments1 comments
The Wave of It All!My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were... By grady pennington1 min readBookmark for laterReactions 0 reactions Comments4 comments
Helen's StoryI am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a... By CommunityMember4604 min readBookmark for laterReactions 0 reactions Comments7 comments
Here We Go AgainI was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no... By CommunityMember8162 min readBookmark for laterReactions 0 reactions Comments8 comments
The Eyes Have ItSome years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in... By CommunityMember67235981 min readBookmark for laterReactions 0 reactions Comments3 comments
10 Years After Diagnosis...I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon which has left me with constant muscle fasciculations... By edbrunk681 min readBookmark for laterReactions 0 reactions Comments7 comments
Seronegative MGMyasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder if menopause was the trigger. The last summer... By Oops31 min readBookmark for laterReactions 0 reactions Comments6 comments
I Have Lived with MG Most of My LifeI was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I... By jdp5233 min readBookmark for laterReactions 0 reactions Comments4 comments
My Story Continues...Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been getting stronger! I just finished my first four... By CommunityMember2c29f61 min readBookmark for laterReactions 0 reactions Comments2 comments
Devastating Personal ExperienceI had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism... By Nicwebid2 min readBookmark for laterReactions 0 reactions Comments3 comments
Anti-MuSK Myasthenia GravisThis past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a viral infection. I waited another 2 weeks and... By Shubby1 min readBookmark for laterReactions 0 reactions Comments3 comments
An MG WeddingI am now 71, but back in 2015, I was married, and then, the next week, I was diagnosed. Droopy eye, trouble swallowing, weakness... I went into crisis while working... By CommunityMemberd48c751 min readBookmark for laterReactions 0 reactions Comments2 comments
Not Myasthenia...In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did... By reneroman1 min readBookmark for laterReactions 0 reactions Comments6 comments
My Journey ContinuesEarlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was... By Connie1 min readBookmark for laterReactions 0 reactions Comments2 comments
Friendship Challenges with MGI have had the opportunity to talk to 2 different men who stated they were interested in knowing me. So I told them about the MG and the disabilities it... By CommunityMember9a806d1 min readBookmark for laterReactions 0 reactions Comments3 comments
Long Journey to DiagnosisI am an 80-year-old woman who wasn’t diagnosed with MG until I was almost 75. I have had symptoms of the disease since I was an older teenager, but no... By tjmjones11 min readBookmark for laterReactions 0 reactions Comments5 comments
My Experience with IVIG & TipsThe article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG... By CommunityMember15ef2e1 min readBookmark for laterReactions 0 reactions Comments3 comments
Yes Connie, This Is Another ConnieWell, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my... By CommunityMember2c29f62 min readBookmark for laterReactions 0 reactions Comments4 comments