Stories

When my neurologist first suggested Vyvgart, I was naive. I thought it would be a one-and-done treatment. It's easy to forget the true scope of Myasthenia Gravis (MG)—there’s a denial...

In January 2023, my life changed. I started experiencing frequent falls, urinary incontinence, and a sense of disorientation. Eventually, I realized much of the disorientation was due to my constant...

In 2022, I noticed that my voice sometimes had a sarcastic tone, which hurt my husband. I kept telling him I wasn’t aware of how my voice sounded. At 59...

I have ocular, double zero negative myasthenia gravis. I was still competing in swimming until I was diagnosed. I had been struggling due to the fact that I couldn't see...

I’ve now been in Asheville for a year with my cat. We found a place that welcomed both of us, and the cat is loved by everyone in the Assisted...

I almost died when I had my first severe flare up in January of 2021. My family doctor didn't know what was going on and called my neurologist in Little...

I've come across some insightful posts on the effects of stress on MG (Myasthenia Gravis) and how to reduce it. My favorite tools for managing stress are taking naps to...

It was a cold day in January 2022 when I fell while walking my dog. She was a pup at the time, so it made no sense to me that...

In 2015, my left eye began to droop until it eventually closed. At first, I thought I had a mild stroke, but when I went to my eye clinic, the...

Hi all! I am a 53 year old Indian Army veteran. I was diagnosed with seropositive Generalized Myasthenia Gravis (GMG) in Feb 2022. In July of 2023, I had had...

I was diagnosed with MG in July of 2015 at age 66 probably had it longer but never starting having difficulty with seeing, breathing and eating etc. until then. After...

My story starts with double vision. While exercising, I would get double vision. When I would rest, it would go away. One day it was so bad I went to...

I am 72 years old, a grandma to 4 kids. I had been mildly incontinent for several years, and in March I suddenly became severely incontinent requiring the use of...

I've got ocular MG (confirmed by serology in Jan 2023) and have had several flare ups over the past year and a half during which my symptoms (particularly diplopia) are...

In the past, I was on Mestinon and CellCept but not prednisone, since my neurologist knew I was also fighting to keep my blood sugar levels down as well. I...

Hello, there is a strong possibility that I have myasthenia gravis. Symptoms started a couple of years ago with strange facial looks and a sarcastic tone at times when I...

I was diagnosed November 2023 but didn’t see a neurologist until April. She put me on prednisone, but it hasn’t helped. My eyes are so painful. My left eyelid drops...

My father died in 1968 at age 72 from MG that was discovered by autopsy. He was unable to swallow any solid food and had great difficulty with liquids. He...

I was diagnosed with myasthenia gravis by my quick-thinking GP back in 2016. It was the sight that was my main concern. I was anxious about not being able to...

In 1997, a doctor said I had restless leg symptom. Then in 1999, I had a brain tumor. Another doctor said I had fibromyalgia and I was prescribed medication. Then...