What I Didn't KnowI submitted a story in January about being angry and sad due to losing my independence. I mentioned I read everything I could find on Google and joined every organization... By Connie3 min readBookmark for laterReactions0reactionsComments9 comments
Where Did This Come From?Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years. It started with double... By CommunityMember9ed8661 min readBookmark for laterReactions0reactionsComments6 comments
First CrisisI was a newbie. Just diagnosed in March of 2021. I was put on Mestinon and started my birthday trip to several cities in early July. As it began, my... By Mike morris2 min readBookmark for laterReactions0reactionsComments6 comments
40 Years Too LongI was 28 at the time I started getting weak and falling. All the doctors I saw had no idea of what was wrong. The first doctor I went to... By CommunityMember14eebf1 min readBookmark for laterReactions0reactionsComments2 comments
The Wave of It All!My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were... By grady pennington1 min readBookmark for laterReactions0reactionsComments10 comments
Helen's StoryI am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a... By CommunityMember4604 min readBookmark for laterReactions0reactionsComments8 comments
Here We Go AgainI was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no... By CommunityMember8162 min readBookmark for laterReactions0reactionsComments11 comments
The Eyes Have ItSome years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in... By CommunityMember67235981 min readBookmark for laterReactions0reactionsComments3 comments
10 Years After Diagnosis...I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon which has left me with constant muscle fasciculations... By edbrunk681 min readBookmark for laterReactions0reactionsComments7 comments
Seronegative MGMyasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder if menopause was the trigger. The last summer... By Oops31 min readBookmark for laterReactions0reactionsComments14 comments
I Have Lived with MG Most of My LifeI was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I... By jdp5233 min readBookmark for laterReactions0reactionsComments4 comments
My Story Continues...Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been getting stronger! I just finished my first four... By CommunityMember2c29f61 min readBookmark for laterReactions0reactionsComments2 comments
Devastating Personal ExperienceI had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism... By Nicwebid2 min readBookmark for laterReactions0reactionsComments7 comments
Anti-MuSK Myasthenia GravisThis past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a viral infection. I waited another 2 weeks and... By Shubby1 min readBookmark for laterReactions0reactionsComments3 comments
An MG WeddingI am now 71, but back in 2015, I was married, and then, the next week, I was diagnosed. Droopy eye, trouble swallowing, weakness... I went into crisis while working... By CommunityMemberd48c751 min readBookmark for laterReactions0reactionsComments2 comments
Not Myasthenia...In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did... By reneroman1 min readBookmark for laterReactions0reactionsComments6 comments
My Journey ContinuesEarlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was... By Connie1 min readBookmark for laterReactions0reactionsComments2 comments
Friendship Challenges with MGI have had the opportunity to talk to 2 different men who stated they were interested in knowing me. So I told them about the MG and the disabilities it... By CommunityMember9a806d1 min readBookmark for laterReactions0reactionsComments3 comments
Long Journey to DiagnosisI am an 80-year-old woman who wasn’t diagnosed with MG until I was almost 75. I have had symptoms of the disease since I was an older teenager, but no... By tjmjones11 min readBookmark for laterReactions0reactionsComments9 comments
My Experience with IVIG & TipsThe article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG... By Denilyn1 min readBookmark for laterReactions0reactionsComments3 comments