Stories

Seventeen years ago just after I turned 40, I started experiencing symptoms of ocular MG that has never progressed to general. I'm seronegative, which led to a year between onset...

I'm going to do my best to tell what my journey has been so ask questions if you need to. I'm 77 years old. Oct 2020 my left eye drooped...

I submitted a story in January about being angry and sad due to losing my independence. I mentioned I read everything I could find on Google and joined every organization...

Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years. It started with double...

I was a newbie. Just diagnosed in March of 2021. I was put on Mestinon and started my birthday trip to several cities in early July. As it began, my...

I was 28 at the time I started getting weak and falling. All the doctors I saw had no idea of what was wrong. The first doctor I went to...

My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were...

I am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a...

I was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no...

Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in...

I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon which has left me with constant muscle fasciculations...

Myasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder if menopause was the trigger. The last summer...

I was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I...

Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been getting stronger! I just finished my first four...

I had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism...

This past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a viral infection. I waited another 2 weeks and...

I am now 71, but back in 2015, I was married, and then, the next week, I was diagnosed. Droopy eye, trouble swallowing, weakness... I went into crisis while working...

In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did...

Earlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was...

I have had the opportunity to talk to 2 different men who stated they were interested in knowing me. So I told them about the MG and the disabilities it...