Donna: My StruggleI was diagnosed November 2023 but didn’t see a neurologist until April. She put me on prednisone, but it hasn’t helped. My eyes are so painful. My left eyelid drops...reactions2comments
First Crisis very FrighteningI was diagnosed with myasthenia gravis by my quick-thinking GP back in 2016. It was the sight that was my main concern. I was anxious about not being able to...reactions3comments
ConfusedIn 1997, a doctor said I had restless leg symptom. Then in 1999, I had a brain tumor. Another doctor said I had fibromyalgia and I was prescribed medication. Then...reactions5comments
17 Years and Counting of Ocular MG SymptomsSeventeen years ago just after I turned 40, I started experiencing symptoms of ocular MG that has never progressed to general. I'm seronegative, which led to a year between onset...reactions1comment
Aries WarriorI'm going to do my best to tell what my journey has been so ask questions if you need to. I'm 77 years old. Oct 2020 my left eye drooped...reactions1comment
What I Didn't KnowI submitted a story in January about being angry and sad due to losing my independence. I mentioned I read everything I could find on Google and joined every organization...reactions9comments
Where Did This Come From?Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years. It started with double...reactions6comments
First CrisisI was a newbie. Just diagnosed in March of 2021. I was put on Mestinon and started my birthday trip to several cities in early July. As it began, my...reactions6comments
40 Years Too LongI was 28 at the time I started getting weak and falling. All the doctors I saw had no idea of what was wrong. The first doctor I went to...reactions2comments
The Wave of It All!My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were...reactions13comments
Helen's StoryI am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a...reactions8comments
Here We Go AgainI was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no...reactions11comments
The Eyes Have ItSome years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in...reactions3comments
10 Years After Diagnosis...I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon which has left me with constant muscle fasciculations...reactions10comments
Seronegative MGMyasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder if menopause was the trigger. The last summer...reactions25comments
I Have Lived with MG Most of My LifeI was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I...reactions4comments
My Story Continues...Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been getting stronger! I just finished my first four...reactions2comments
Devastating Personal ExperienceI had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism...reactions7comments
Anti-MuSK Myasthenia GravisThis past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a viral infection. I waited another 2 weeks and...reactions3comments
Not Myasthenia...In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did...reactions6comments
