Stories

Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in...

I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon which has left me with constant muscle fasciculations...

Myasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder if menopause was the trigger. The last summer...

I was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I...

Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been getting stronger! I just finished my first four...

I had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism...

This past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a viral infection. I waited another 2 weeks and...

I am now 71, but back in 2015, I was married, and then, the next week, I was diagnosed. Droopy eye, trouble swallowing, weakness... I went into crisis while working...

In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did...

Earlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was...

I have had the opportunity to talk to 2 different men who stated they were interested in knowing me. So I told them about the MG and the disabilities it...

I am an 80-year-old woman who wasn’t diagnosed with MG until I was almost 75. I have had symptoms of the disease since I was an older teenager, but no...

The article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG...

Well, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my...

I was diagnosed with MG in 1992 after being subjected to every kind of blood work and test available at that time. But, nothing was really positive until my doctor...

My MG had been in remission for ten plus years. It was under control due to Azathioprine (50 mg) yet it fell out of remission. After a few months of...

Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week, walking three miles a day, volunteering, busy with...

My myasthenia gravis came on with a vengeance in the midst of a major business-related stress situation. Double vision and alternately drooping eyelids were constant for the next 8 years...

I developed double vision at 19, assumed it was too many late nights but it wouldn’t go away. Then I noticed weak arms, legs, couldn’t walk far. I spent 18...

I was originally diagnosed in 1988 I woke up one morning unable to fully open my eyes. My eyeballs would not move. This, it seems, are quite common symptoms. After...