Yes Connie, This Is Another ConnieWell, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my... By CommunityMember2c29f62 min readBookmark for laterReactions 0 reactions Comments4 comments
It's Been 31 Years NowI was diagnosed with MG in 1992 after being subjected to every kind of blood work and test available at that time. But, nothing was really positive until my doctor... By 1 min readBookmark for laterReactions 0 reactions Comments1 comments
Out of Remission: Adding a Second AzathioprineMy MG had been in remission for ten plus years. It was under control due to Azathioprine (50 mg) yet it fell out of remission. After a few months of... By ralsted1 min readBookmark for laterReactions 0 reactions Comments16 comments
Life Change at 73Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week, walking three miles a day, volunteering, busy with... By Connie1 min readBookmark for laterReactions 0 reactions Comments4 comments
Living in RemissionMy myasthenia gravis came on with a vengeance in the midst of a major business-related stress situation. Double vision and alternately drooping eyelids were constant for the next 8 years... By CommunityMember4941 min readBookmark for laterReactions 0 reactions Comments3 comments
31 Years DownI developed double vision at 19, assumed it was too many late nights but it wouldn’t go away. Then I noticed weak arms, legs, couldn’t walk far. I spent 18... By CommunityMember5cced21 min readBookmark for laterReactions 0 reactions Comments2 comments
In Remission NowI was originally diagnosed in 1988 I woke up one morning unable to fully open my eyes. My eyeballs would not move. This, it seems, are quite common symptoms. After... By CommunityMember38a69b1 min readBookmark for laterReactions 0 reactions Comments8 comments
My Myasthenia StartI was an Army Reservist and a nurse. It started in fall 2016 with extreme fatigue, I mean bad, I worked night shift for years, had deployed, done 24hr duties... By bjsmith47955 min readBookmark for laterReactions 0 reactions Comments3 comments
gMG and MeThe exhaustion started at age 30. I was waitressing and walking/hiking four days a week. One day bang I could not get up off the couch. It lasted three months... By CommunityMember2694 min readBookmark for laterReactions 0 reactions Comments3 comments
Recovering from Crisis and...Hi, I’m a 54-year-old Canadian woman who was scheduled for bariatric surgery at the beginning of September…. I was discharged after being in the neuro unit for a week because... By Sdlarter1 min readBookmark for laterReactions 0 reactions Comments13 comments
My Dream of Becoming A DoctorI was diagnosed 6 years after the onset of my symptoms. Two months before of my medical entrance test, my condition suddenly got so bad that I ran out of... By tina1 min readBookmark for laterReactions 0 reactions Comments1 comments
Just when you think you are safe...It's been almost 3 years since hubby has had a crisis. He took his meds, avoided infections, and improved steadily. Then one day last week MG came out of the... By Juliana Texley2 min readBookmark for laterReactions 0 reactions Comments0 comments
Thankful, GratefulI was diagnosed in 1974 with this disease. I had double vision and was very weak in my arms. I fell down the steps going out the front door with... By CommunityMember12361 min readBookmark for laterReactions 0 reactions Comments2 comments
10 Week Update: My Vyvgart ExperienceMy Vyvgart treatment started May 18, 2022. I am at 10 weeks from that start date. Here is an earlier update I posted. Included in my start kit was a... By PatriceNo1 min readBookmark for laterReactions 0 reactions Comments13 comments
Detected Late?I am a 57-year-old male, a university teacher in India. I was diagnosed with MG only about a year ago, but now I think I may have been living with... By Sanjeev1 min readBookmark for laterReactions 0 reactions Comments7 comments
Didn't Know I Really Had MG Until My Crisis!I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But a quick intervention with the neurology team gave... By CommunityMember8161 min readBookmark for laterReactions 0 reactions Comments7 comments
Living With Two Rare Diseases12 years ago I was diagnosed with MG. I couldn't swallow, had a very hard time talking, was fatigued, weak, and had little or no control of my tongue. Anytime... By CommunityMember7453 min readBookmark for laterReactions 0 reactions Comments2 comments
Conserving EnergyI don't know if this has been brought up... When I have several things I want to accomplish I think of all that energy. How can I do all of... By Gramma Louise1 min readBookmark for laterReactions 0 reactions Comments4 comments
My Vyvgart ExperienceI am AChR-positive, and allergic to Prednisone, so my treatment is Pyridostigmine only. I was at 60 MG 5 times a day and struggling. I have received 4 rounds of... By PatriceNo3 min readBookmark for laterReactions 0 reactions Comments9 comments
A New Life with Myasthenia GravisMy journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started my clinical rotation in med school. Night shifts... By hi_im_ais3 min readBookmark for laterReactions 0 reactions Comments3 comments