Navigating Relapse: A Story of Fluctuating Myasthenia Gravis

I'm new to this site, and I'm looking for others who have had a similar experience.

The first onset and remission

My journey with Myasthenia Gravis (MG) started five years ago when I developed double vision. I was diagnosed with MG and started taking Mestinon. The symptoms quickly went into remission, and I took no medication for several years.

The relapse and escalating treatment

Unfortunately, the double vision returned this spring. I went back on Mestinon and Prednisone, but neither helped this time.

My doctors began treating me with IVIg (Intravenous Immunoglobulin). The five-day sessions were spaced a month apart, and the double vision disappeared completely for a time.

However, about a month ago, the symptoms returned and progressed: I now have drooping eyelids (ptosis), some weakness in my left hand, difficulty chewing, and severe fatigue.

I'm currently into my second week of Rystiggo (rozanolixizumab) infusions and back on Prednisone. As you can imagine, I am quite discouraged by this relapse and the need for escalating treatments.

I would truly appreciate hearing from anyone who has experienced a similar pattern of remission, relapse, and the switch to newer infusion therapies.