Pay Attention to Slow Heart RateI had taken Mestinon for years. The pharmacy printout mentioned slow heart rate as a possible side effect. I had not noticed...reactions4comments
Two Years of Vyvgart: Progress, Challenges, and GratitudeWhen my neurologist first suggested Vyvgart, I was naive. I thought it would be a one-and-done treatment. It's easy to forget the...reactions7comments
Disoriented Vision: My Struggle with MGIn January 2023, my life changed. I started experiencing frequent falls, urinary incontinence, and a sense of disorientation. Eventually, I realized much...reactions7comments
Living with Uncertainty: My Path to Answers and HealingIn 2022, I noticed that my voice sometimes had a sarcastic tone, which hurt my husband. I kept telling him I wasn’t...reactions11comments
Living with Myasthenia Gravis in Asheville: A Year of Setbacks and StrengthI’ve now been in Asheville for a year with my cat. We found a place that welcomed both of us, and the...reactions11comments
Searching for relief after a near death experienceI almost died when I had my first severe flare up in January of 2021. My family doctor didn't know what was...reactions2comments
The Challenges of Myasthenia Gravis and Life BeyondIn 2015, my left eye began to droop until it eventually closed. At first, I thought I had a mild stroke, but...reactions11comments
Ptosis Prevents Me from Living My LifeI have ocular, double zero negative myasthenia gravis. I was still competing in swimming until I was diagnosed. I had been struggling...reactions8comments
Avoid Amplifying Your Stress: Simple Strategies for Managing StressI've come across some insightful posts on the effects of stress on MG (Myasthenia Gravis) and how to reduce it. My favorite...reactions1comment
MG and Eastern Medicine PracticesIt was a cold day in January 2022 when I fell while walking my dog. She was a pup at the time...reactions2comments
Reclaiming Life with Generalized Myasthenia GravisHi all! I am a 53 year old Indian Army veteran. I was diagnosed with seropositive Generalized Myasthenia Gravis (GMG) in Feb...reactions2comments
2024 Has Been Interesting to Say the LeastI am 72 years old, a grandma to 4 kids. I had been mildly incontinent for several years, and in March I...reactions6comments
17 years with MGMy story starts with double vision. While exercising, I would get double vision. When I would rest, it would go away. One...reactions1comment
Coping With an MG CrisisI was diagnosed with MG in July of 2015 at age 66 probably had it longer but never starting having difficulty with...reactions1comment
Duration of Ocular MG Flare Ups?I've got ocular MG (confirmed by serology in Jan 2023) and have had several flare ups over the past year and a...reactions19comments
First Crisis very FrighteningI was diagnosed with myasthenia gravis by my quick-thinking GP back in 2016. It was the sight that was my main concern...reactions3comments
Is MG Inherited?My father died in 1968 at age 72 from MG that was discovered by autopsy. He was unable to swallow any solid...reactions8comments
Strong Probability I have Myasthenia GravisHello, there is a strong possibility that I have myasthenia gravis. Symptoms started a couple of years ago with strange facial looks...reactions47comments
ConfusedIn 1997, a doctor said I had restless leg symptom. Then in 1999, I had a brain tumor. Another doctor said I...reactions5comments
MG Second Time AroundIn the past, I was on Mestinon and CellCept but not prednisone, since my neurologist knew I was also fighting to keep...reactions2comments