Stories

I am an 80-year-old woman who wasn’t diagnosed with MG until I was almost 75. I have had symptoms of the disease since I was an older teenager, but no...

The article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG...

Well, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my...

I was diagnosed with MG in 1992 after being subjected to every kind of blood work and test available at that time. But, nothing was really positive until my doctor...

My MG had been in remission for ten plus years. It was under control due to Azathioprine (50 mg) yet it fell out of remission. After a few months of...

Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week, walking three miles a day, volunteering, busy with...

My myasthenia gravis came on with a vengeance in the midst of a major business-related stress situation. Double vision and alternately drooping eyelids were constant for the next 8 years...

I developed double vision at 19, assumed it was too many late nights but it wouldn’t go away. Then I noticed weak arms, legs, couldn’t walk far. I spent 18...

I was originally diagnosed in 1988 I woke up one morning unable to fully open my eyes. My eyeballs would not move. This, it seems, are quite common symptoms. After...

I was an Army Reservist and a nurse. It started in fall 2016 with extreme fatigue, I mean bad, I worked night shift for years, had deployed, done 24hr duties...

The exhaustion started at age 30. I was waitressing and walking/hiking four days a week. One day bang I could not get up off the couch. It lasted three months...

Hi, I’m a 54-year-old Canadian woman who was scheduled for bariatric surgery at the beginning of September…. I was discharged after being in the neuro unit for a week because...

I was diagnosed 6 years after the onset of my symptoms. Two months before of my medical entrance test, my condition suddenly got so bad that I ran out of...

It's been almost 3 years since hubby has had a crisis. He took his meds, avoided infections, and improved steadily. Then one day last week MG came out of the...

I was diagnosed in 1974 with this disease. I had double vision and was very weak in my arms. I fell down the steps going out the front door with...

My Vyvgart treatment started May 18, 2022. I am at 10 weeks from that start date. Here is an earlier update I posted. Included in my start kit was a...

I am a 57-year-old male, a university teacher in India. I was diagnosed with MG only about a year ago, but now I think I may have been living with...

I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But a quick intervention with the neurology team gave...

12 years ago I was diagnosed with MG. I couldn't swallow, had a very hard time talking, was fatigued, weak, and had little or no control of my tongue. Anytime...

I don't know if this has been brought up... When I have several things I want to accomplish I think of all that energy. How can I do all of...