Stories

I am AChR-positive, and allergic to Prednisone, so my treatment is Pyridostigmine only. I was at 60 MG 5 times a day and struggling. I have received 4 rounds of...

My journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started my clinical rotation in med school. Night shifts...

I had taken Mestinon for years. The pharmacy printout mentioned slow heart rate as a possible side effect. I had not noticed a slowed pulse and so went on as...

My name is Stephen, I reside in the North East of England. I've never enjoyed great health since 2003 when I developed chronic recurring nasal polyps, and I'm now five...

After reading all of your stories about MG, I am glad not to be the only one with this. I was diagnosed in April 2019 with a pretty bad case...

I just started the new drug Vyvgart, I am on the fourth dose given over 4 weeks with a break in between I am feeling a lot better. I was...

I was diagnosed with MG on June 2, 2021. The first major symptom was waking up with double vision. After seeing my PCP, he sent me to an ophthalmologist the...

Hi. My name is Brad. I am 60 years old. My diagnosis was only a week ago, but this process may have started back in 2020. Back then, I started...

I was weak everywhere from the get-go. In March of 2005, I noticed I couldn't button my jeans or raise my arms to fix my ponytail. Then I started choking...

During a family Christmas party, my uncle, an optometrist, noticed something different with my eyes. "Come here Kathryn, let me get a close-up of your eyes." Following his finger movement...

I started experiencing mild MG symptoms 2 months ago. I'm not officially diagnosed yet but I think I am having a milder case of ptosis. What do you think?  ...

On November 18th, 2021, I suffered from horrendous double vision. Weeks earlier, I started having issues with bladder control. I visited my GP and was immediately sent to the stroke...

Looking back, the first thing I noticed was photographs. My smile was crooked and one side of my face seemed to droop. I thought gravity was playing tricks on me...

I was 50-years-old and I started falling. My legs gave out, which went on for six months until I fell going up the stairs and broke my first bone in...

I was first told I had MG in 1976 back then no one really knew too much about it, I was lucky and had a great eye doctor who actually...

I started experiencing double vision in 2019. It could get quite severe at times. Went to the doctor and she thought it was vestibular. She sent me to an ENT...

I am 71 years old and was enjoying my retirement and, up until now, was doing 4-6 hours of heavy gardening/exercise 6 days a week. My introduction to myasthenia gravis...

I was 21 years old when I experience some symptoms in late 2018. Symptoms started with chewing and swallowing difficulty that was gradual. Then muscle weakness of my arms but...

I am a 22-year-old female from Uganda and a midwife by profession. I started experiencing symptoms around late 2019, mainly difficulty in speech and swallowing. At that time, I was...

I was diagnosed with gMG back in January of 2019. At that time it only affected my eyes. It went into submission and I never really took any of the...