Life Changing MG

I was 21 years old when I experience some symptoms in late 2018. Symptoms started with chewing and swallowing difficulty that was gradual. Then muscle weakness of my arms but I still could not understand what was the problem with me.

Noticeable changes

My mother noticed a change in my facial expressions but still, she was thinking that I simply suffered from body weakness. She brought me to an ENT specialist for chewing and swallowing difficulty.

In early 2019 I got married and I faced more difficulties around that time with chewing, swallowing, walking, combing my hair, and doing my daily routine.

Going into crisis

One day in March 2020, I went into crisis and needed a ventilator for breathing. My doctor appointed a neurologist and finally they diagnosed me with generalized MG. After that, I was on pyridostigmine 60 mg for the last 2.5 years and other steroids.

After this medication, my MG got worse. In August 2020 I go through with IVIG. The IVIG works well but the side effects are so annoying. I put on 10 to 15 kg and I am unable to fit in my clothes.

Thymectomy

During this period my husband and family are beside me. They taught me not to give up the fight for myself. In early 2021, I felt more normal with my MG. I went through a thymectomy in June 2021. Nowadays, I can run my life easier but with some exceptions.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Myasthenia-Gravis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.