Where Did This Come From?
Last updated: May 2023
Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years.
My initial symptoms
It started with double vision. Optometrist could not find anything except maybe cataracts so I had laser surgery. Things seemed to improve some but had to close my right eye when descending stairs. Six months later, I began having slurred speech and a right eye droop.
The neurologist tested me for a stroke but found nothing and told me to come back in a year. Shortly afterward I had my annual eye exam and my optometrist ask how I was doing. I explained that I was having slurred speech and eye droop but the neurologist found no signs of a stroke.
He then said it sounds like you may have MG. Of course, I had never heard of it. I checked with my family doctor and he ran a test and found that my ACHR Binding Antibody was at 46.60 nmol/L.
I started Prednisone and Pyridostigmine with some improvement but a year later I had a flare and it was bad. The doctor started me on Plasma Protein infusions. Which helped a lot.
A recent flare
However, just two months ago I had another flare and the doctor added Imuran 50mg to my daily meds. I am still having ptosis, difficulty swallowing, and biting down on food.
This comes and goes on a daily basis. My heart goes out to all that are suffering from this condition and hopefully, they can find a cure. I am 80 years old.
How helpful is following a daily routine for managing your MG?
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