The Eyes Have It

By CommunityMember6723598

1 min read

Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in a short time. It did not.

I called my doctor's office one evening about it and spoke to a nurse. She was concerned and spoke to the on-call doctor who suggested I go to the ER immediately thinking I may be having a stroke. I went to ER, and was admitted immediately.

Receiving a diagnosis

A couple of days later, a hospital doctor advised I had myasthenia gravis. I had never heard of it. I was put on antibiotics and discharged days later. I did recover.

I started researching online about this and became worried. I talked with my regular doctor. I joined this group to learn more and stay on top of things. Thank you.

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CommunityMember6723598 Member
I am sorry I do not remember the antibiotic. But after taking the antibiotic, my symptoms went away. It has been over a year or more now. But, I do still have head discomfort or mild pain. Prior to the MG diagnosis, I had been having discomfort on the back of my head. It still bothers me. It actually hurts to lay my head on a pillow. I had headaches. Not migraines. Sometimes I had, and still have, like a shock/sharp pain shoot through my eye without warning. No doctor has really listened to me about the discomfort on the back of my head. Not sure if it is related to the MG. I have not been referred to a neurologist/neurosurgeon. No MG testing has been done. My eye doctor advised me in November 2022 during an exam, that I have the beginning stages of glaucoma. I told her about the MG diagnosis. She seemed concerned because not only the MG, but i had to wear a prism lens in my glasses years ago, around 2016/2017. I wore for over a year. My eye corrected. Then I had another eye episode and ended up in the hospital being diagnosed with MG. I had Bells Palsy on both sides of my face, at different times, many years ago. I have had 3 episodes in 2-1/2 years of vertigo. My head/brain is not right. I worry I may have a tumor or an aneurysm. But no one listens. 
1. Sally Farrier Moderator & Contributor
 <inline-mention username="CommunityMember6723598" user-id="6723598"/>, I am so sorry you are going through this!! I do hope that testing is done for MG. So, you can get on the right treatment for it. (The I had been having discomfort on the back of my head. It still bothers me. It actually hurts to lay my head on a pillow. I had headaches. Not migraines. Sometimes I had, and still have, like a shock/sharp pain shoot through my eye without warning.) I also get!! For me it is not MG related. But I do have a Chiari Malformation (brain herniation into the spinal column.) Chiari Malformation can cause many neurological issues. Some similar to MG. I am constantly changing pillows to sleep. Or using a rolled-up towel under my neck for a pillow. I am not a DR. this is just my experience. I had a few MRI before getting the MG diagnosis, they were looking for multiple sclerosis. But they found the Chiari Malformation. I will include a link to information about Chiari Malformation. I too was told that I had Bell's Palsy a couple of times it has turned out it was the MG face sag... I get it just about every day now. I am also including a link to an article (the difference between Bell's Palsy & Myasthenia gravis.) Sorry to hear that you have the beginnings of glaucoma. But I am glad that your eye Dr. found early!! Hugs to you!! Sally Farrier...Myasthenia-Gravis.com (team member). https://myasthenia-gravis.com/clinical/bells-palsy-differences https://chiaribridges.org/
Jodi Enders Moderator & Contributor
@CommunityMember6723598 Hey! Thanks for joining our community! Which antibiotics were you put on that helped? Are you experiencing vision problems anymore or other weaknesses? Has your regular doctor referred you to a neurologist or ordered MG testing to confirm the diagnosis? - Jodi, Team Member