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Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience.

Have you had problems swallowing before? What foods are tolerable? How do you manage to take any prescription pills?

  1. I have had problems swallowing for many years and now that my jaw muscles are giving me problems it is much worse. I try to eat things that require the least amount of chewing or no chewing. That is not perfect because I still struggle with choking. I have an awful time with spaghetti noodles getting stuck and not being able to choke them back up. I also struggle with liquids going down the wrong pipe when I drink out of a glass. I try to use a cup with a straw which is only slightly better but my mouth muscles struggle forcing me to take short drinks much more often.

  2. I have an area right by my adams apple that causes coughing choking and it feels like it is forever clogged. I can feel drainage almost constantly and when it gets a little bit enflamed I struggle to breath, and I can cough for hours on end. I have found no relief. During my my 17 hour visit to the emergency Room Friday into Saturday for breathing issues and severe weakness a nurse gave me a Lidocaine mouth wash so I could get through 45 minutes of MRI for brain cervicle Spine with and without the dye without coughing. I just made it out when the cough started again. The only thing that worried me was choking on the drainage since I couldn't feel it. I survived.

  3. I experience shortness of breath, double vision, weakness in right arm and hand. Dizziness, weakness in thigh muscles and walks with a wide gait holding on to anything I can.

  4. Yes and it’s awful. I’ve been to the ER for choking and spent 3 months afterward on pureed foods and thickened liquids. That episode got me on a new treatment which has helped, and a few months later there’s foods I realize I may never eat again. I still monitor everything I put in my mouth as it’s just not worth it risking aspiration

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