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Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience,,, and

Have you had problems swallowing before? What foods are tolerable? How do you manage to take any prescription pills?

  1. Yes

    1. I've had Generalised MG for over 49 years and for the 1st time in 2020 I experienced the paralysed feeling of not being able to swallow, chew or speak. There's not enough space here to explain the experience I had. It was disgraceful.

      1. I send my deepest compassion your way that you endured such a horrible situation. In your opinion, if you went to the hospital when this all went down, how did they handle it? -Jodi, Team Member

    2. yes

      1. Have you found any solutions that help or work occasionally?
        -Jodi, Team Member

    3. Yes and NO ONE even Docs dont seem to understand! Its horrible, embarashing , and Scary. Thank you for writing about this!!

      1. Yes Mestinon 180 XR. Cellcept caused an abdominal bleed.

      2. How scary!! Have you considered adding another MG treatment, or did the CellCept experience create too much apprehension? ( Of course, what happened to you, I assume, was unpredictable (unless there were risks with other treatments, etc). Sometimes, MG treatments work better for specific MG antibodies if you know which you are positive for or if you are seronegative.
        -Jodi, Team Member

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