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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active today

Diagnosis

Hello, I’m a 35 year old mum of two, and about 2 years ago I started noticing my eye lid on one...

Active yesterday

Seronegative

Hi earlier this year I was only tested for the achr tests. They were negative so doctors say I don't have mg...

Active yesterday

Seronegative all symptoms/all negative BE and EMG/RNS

Hi everyone, I am new here and also new to myasthenia gravis. I have all negative bloodwork and a negative EMG/RNS. The...

Active 2 days ago

I never heard of myasthenia gravis until the neuroglist said I have it.

I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I...

Active 2 days ago

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or...

Active 2 days ago

Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time?...

Active 2 days ago

Swallowing issues

I am wondering about how other people's swallowing issues. I was fine this morning, breakfast with no issues. Took my two mestinon...

Active 3 days ago

This summer's weather

First time in 12 years with MG where the heat has gotten to me. I've felt tired, weak, worn out, so I'm...

Active 3 days ago

Do you and your doctor "get" each other?

If you could change one thing about the way you and your doctor talk to each other, what would it be? Do...

Active 3 days ago

Suspected MG, negative tests so far, SFEMG pending

I've been under treatment since a month and a halve Experienced first symptoms, like fatigue and problems reading things up close after...

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