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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active today

Muscle cramping

I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the...

Active 3 days ago

Advice/comments for new MG diagnosis and possible treatments

This is quite long, but if you have time and can share any thoughts, I would be very appreciative. New MG diagnosis and would like some opinions on doctor's advice...

Active 5 days ago

Do positive blood tests later show no sign of gMG?

My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after 3 positive blood tests that kept getting worse...

Active 6 days ago

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

FeaturedActive 7 days ago

Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

LRP4 Question

I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and MUSK type. Has anyone with LRP4 found any...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...

Refractory AChR+ gMG Flares: How Long Can They Last?

Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away as of May 19. Haven't felt this bad...

Neurologist concerns? I have them.

I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision perplexed the best of them til my ophthalmologist...

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years. I have the muscle weakness, pain, double vision...

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