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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Tips for breathing

Most of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which happens every so often to me. What do...

FeaturedActive 3 days ago

Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

Active 5 days ago

Seeking an "accomodation" from my workplace HR department

When I wake up in the morning, sometimes I feel weak and a little twitchy in the muscles. And if my eye is a little droopy it is really not...

Active 6 days ago

Muscle cramping

I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...

Side effects of Mestinon

I have a colostomy. Mestinon causes me to have bloating, pressure and abdominal pain. I am concerned about continuing to use Mestinon. My doctor doesn’t seem to have any other...

Travel Considerations

My best friend is 87 y.o. He wants me to do a cruise with him on a 160 passenger ship to Antartica. I have been diagnosed with MG since last...

Advice/comments for new MG diagnosis and possible treatments

This is quite long, but if you have time and can share any thoughts, I would be very appreciative. New MG diagnosis and would like some opinions on doctor's advice...

double vision

For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

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