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Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...

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Mestinon side effects

I can no longer eat any tomatoes and any foods or sauces with a tomato base. Has anyone else experienced this with Mestinon, and is there a simple remedy?...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Side effects of medication

I was recently in the hospital with Acute Pancreatitis and a duodenal ulcer. I was in for five days and discharged. I was only home a week and went back...

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...

Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?

Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...

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