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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 4 days ago

Side effects of Mestinon

I have a colostomy. Mestinon causes me to have bloating, pressure and abdominal pain. I am concerned about continuing to use Mestinon. My doctor doesn’t seem to have any other...

What are the early signs of glaucoma, and can a regular optician spot them?

Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages. Some early signs, when they do appear, may...

Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...

Ocular MG

Hello everyone! I was diagnosed with Ocular MG about two years ago and I hadn't had an episode until a month ago. This is just my second one and it...

Knee Pain

Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Weight loss

Is losing weight caused by MG? I'm not doing as much exercise due to muscle weakness but I am losing weight...

Tremors and Myasthenia Gravis

Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...

new medicine

Hi. My doctor switched my medication from Mestinon to Azathioprine. Anybody else taking this? The side effects look grim. If you are taking it what, if anything, happened to your...

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...

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