Active 3 days agoLeg and Foot Cramping and PainMany individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...Reactions0reactionsComments571 repliesSleepSide EffectsSymptoms
Active 7 days agoTremors and Myasthenia GravisHas anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...Reactions0reactionsComments10 repliesSymptomsSide EffectsTreatment
Toll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions0reactionsComments87 repliesSide EffectsTreatmentNewly Diagnosed
Knee PainDo you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...Reactions0reactionsComments2 repliesCopingTips & AdviceSide Effects
MethotrexateIs anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...Reactions0reactionsComments1 repliesSide Effects
IVIG Side EffectsIVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...Reactions0reactionsComments25 repliesSide EffectsTreatmentMuscle Weakness
What Part of Your Legs Do You Have Pain or Cramps Most Often?What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...Reactions0reactionsComments1 repliesTreatmentSide EffectsSymptoms
Have you noticed any toe changes like curling or stiffness?Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How have these changes affected your daily activities?...Reactions0reactionsComments1 repliesSymptomsSide EffectsAwareness
Medication & Treatment Side EffectsHave you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...Reactions0reactionsComments17 repliesTreatmentSide Effects
How do you deal with fatigue?Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for me I always seem to have a roller...Reactions0reactionsComments6 repliesSide EffectsTips & Advice