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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Tremors and Myasthenia Gravis

Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...

Knee Pain

Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

What Part of Your Legs Do You Have Pain or Cramps Most Often?

What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...

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