Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...Reactions 0 reactions Comments0 repliesSeronegativeTreatmentDiagnosis
TinnitusI have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...Reactions 0 reactions Comments9 repliesSymptomsDiagnosis
Borderline achr antibodiesHey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...Reactions 0 reactions Comments4 repliesDiagnosisGeneralized MG
My experience with University of Chicago neuromuscular clinic-seronegative frienslyI feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...Reactions 0 reactions Comments2 repliesDiagnosis
Side Effects From Pyridostigmine(Mestinon)Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the side effects of these kinds of medications, acetylcholinesterase...Reactions 0 reactions Comments21 repliesSide EffectsTreatmentDiagnosis
Was Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions 0 reactions Comments45 repliesAwarenessDiagnosisSymptoms
What Test(s) Were Used to Diagnose Your MG?What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis...Reactions 0 reactions Comments21 repliesSymptomsNewly DiagnosedDiagnosis
Diagnosis - New Symptoms?Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...Reactions 0 reactions Comments5 repliesSymptomsDiagnosis
Advocating and making changes in the diagnosis and treatment of Myasthenia Gravis I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...Reactions 0 reactions Comments2 repliesAwarenessResearch & Clinical TrialsDiagnosis
Breathing problemsI'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...Reactions 0 reactions Comments1 repliesDiagnosisAssistive DevicesGeneralized MG
