What Test(s) Were Used to Diagnose Your MG?
What tests did doctors run to diagnose your MG?
Were imaging and bloodwork involved in your diagnosis?
I was diagnosed at Mayo Clinic about 1970 by Tensalon Test which was Very Dramatic.....I consider Mestinon to be an Obsolete Drug ....there are several good ones available now that were not back then....I was in Crisis on a Vent for 81 days un ICU about 1975....Only drug available was still Mestinon, which was useless....have since been on Pred, CelCept, IVig, VYVGART, others....Plex works best when really needed!...I AM 89 YRS OLD and still haning in there after two other Crisis ICU stays...>DM
what a plex ?
I had my thymus gland removed, it took about a year to notice improvements, I'm 65 and doing better than I have in years
Blood work
the AChR test came back 4 times what the borderline number is. I'm immune suppressed because of Kidney transplant so that stunned me. I just started on Mestinon in November. Seems to me with an antibody count that high I should be doing plex but I hesitate to ask about it because all my blood vessels are shot from doing dialysis in the distant past and it seems too much like doing dialysis again.
Hey! Never be afraid to ask questions, and use up all the time in your appointments! Have you considered a port to ease the stress and risk to your veins? - Jodi, Team Member
