I had my thymus gland removed, it took about a year to notice improvements, I'm 65 and doing better than I have in years
CommunityMembere810b2 Member
Blood work
JustDeb Member
the AChR test came back 4 times what the borderline number is. I'm immune suppressed because of Kidney transplant so that stunned me. I just started on Mestinon in November. Seems to me with an antibody count that high I should be doing plex but I hesitate to ask about it because all my blood vessels are shot from doing dialysis in the distant past and it seems too much like doing dialysis again.
Jodi Enders Moderator & Contributor
Hey! Never be afraid to ask questions, and use up all the time in your appointments! Have you considered a port to ease the stress and risk to your veins? - Jodi, Team Member
Juliana Texley Moderator & Contributor
We were really fearing that they were not going to believe the diagnosis and been thrown back into confusion again. No positive blood tests at all. But the SFEMG was totally positive. We salute a persistent and insightful young doctor. Juliana (MG Team Member)
CommunityMember5037c4 Member
absolutely. I was fortunate to find an ER doc who knew the latest and acted very quickly to help me through the worst of a crisis.
Jodi Enders Moderator & Contributor
Same! I was diagnosed on my first ER visit when I was having a crisis, a fairly young doctor!
Jodi, Team Member