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What Test(s) Were Used to Diagnose Your MG?

What tests did doctors run to diagnose your MG?

Were imaging and bloodwork involved in your diagnosis?

  1. I’m 5 years in and in my case, I’ve got both gMG and had a Myasthenic Crisis. My neurologist used all of them:

    Repetitive Nerve Stimulation (RNS)
    Single-Fiber Electromyography (SFEMG) - This one hurts!
    Full panel of Blood Testing to identify (AChR) antibodies which most of us have, or anti-MuSK and LPR4 antibodies (rarer variants)
    Imaging: Chest CT, MRI & a PET Scan to detect thymoma and confirm final diagnosis.
    Trial flights of Mestinon, CelCept, Prednisone (just say no to this one if you can, if not prepare to get big)
    Plasma Exchange- creepy but effective

    Stay Strong💪

    1. I dont have droopy eyelids but alot of twitching. So irritating. Rubbery limbs. Gumby!

      1. I am 78 and surgery has never been offered or mentioned at all. I was diagnosed 2 years ago. I was immediatly put on IVIG. I received it monthly. I felt terrific. My doctor moved out of town. Now with new doctor I am living a nightmare. She put be on Gammagard. I now have liver pain. Constant yellow diarrea. And feel like Gumby! (Gumby was a carton years ago. He was rubber. When he walked his arms and legs were wobbley). I spoke with my doctor and asked to be put back on IVIG. She agreed. Besides mestanon I receive monthly infusions. I am being put back on Human immunoglobulin! Yeah!!!!

        1. I was diagnosed at NC Baptist Hospital in 1967 by Tensalon Test

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